Change Request
 

NHS Connecting for Health

NHS Data Model and Dictionary Service

Reference: Change Request 1185
Version No:1.0
Subject:NHS Data Model and Dictionary Modelling Changes - Newborn Blood Spot Test
Effective Date:Immediate
Reason for Change:Change to Data Standards
Publication Date:3 September 2010

Background:

The NHS Data Model and Dictionary Service are currently working with the Department of Health and Information Centre for Health and Social Care to develop a number of Data Sets.

During the business analysis stage, it has been identified that these Data Sets cover a number of common areas which are either not currently in the NHS Data Model and Dictionary or amendments are required to make the current information suitable for use in these Data Sets.

This Data Set Change Notice adds the common data items and associated data modelling changes for "Newborn Blood Spot Tests" into the NHS Data Model and Dictionary in preparation for these Data Sets. The changes are detailed in the "Summary of changes" below.

The primary purpose is to introduce a new Attribute and NHS Business Definition into the NHS Data Model to support the new data sets currently under development. This will enable the new data sets to use the generic data items and codes for reporting Newborn Blood Spot Test statuses and outcomes.

These changes do not need to be implemented in end-user systems until the Information Standards Notices for the specific data sets come into effect. Other specific items will be added to the Data Sets during development.

Summary of changes:

Supporting Information
NEWBORN BLOOD SPOT TEST   New Supporting Information
 
Class Definitions
CLINICAL INTERVENTION   Changed Description
CLINICAL INVESTIGATION RESULT ITEM   Changed Attributes
 
Attribute Definitions
NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE   New Attribute
 

Date:3 September 2010
Sponsor:Ken Lunn, Director of Data Standards and Products, NHS Connecting for Health

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

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NEWBORN BLOOD SPOT TEST

Change to Supporting Information: New Supporting Information

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

A Newborn Blood Spot Test is a Clinical Investigation.

A Newborn Blood Spot Test is performed to identify any serious condition that a baby may have.

All babies are screened for:

  • Phenylketonuria
  • Congenital Hypothyroidism
  • Sickle Cell Disorders
  • Cystic Fibrosis
  • Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)

For further information on Newborn Blood Spot Tests, see the UK Newborn Screening Programme Centre website.

 

This supporting information is also known by these names:
ContextAlias
pluralNewborn Blood Spot Tests

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CLINICAL INTERVENTION

Change to Class: Changed Description

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CLINICAL INVESTIGATION RESULT ITEM

Change to Class: Changed Attributes

Attributes of this Class are:
KINVESTIGATION RESULT DATE
KINVESTIGATION RESULT TIME
ARITHMETIC COMPARATOR
BIOPSY REFERRAL OUTCOME
CANCER HISTOLOGICAL TYPE
CANCER MARKER LYMPH NODE STATUS
CANCER VASCULAR OR LYMPHATIC INVASION
CERVICAL SMEAR EXAMINED DATE
CLINICAL INVESTIGATION ITEM UNIT OF MEASURE
CLOSEST MARGIN
CYTOLOGY RESULT TYPE
CYTOLOGY SMEAR REASON
DEVIATING RESULT INDICATOR
EXCISION MARGIN
GRADE OF DIFFERENTIATION
INVASIVE CANCER SPECIAL TYPE INDICATOR
INVASIVE LESION SIZE
INVESTIGATION EXAMINATION RESULT CODE
INVESTIGATION RESULT TEXT
LYMPH NODE STATUS
MARKER LYMPH NODE RESULT
NECROSIS
NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE
NEWBORN HEARING SCREENING OUTCOME
NODES EXAMINED NUMBER
NODES POSITIVE NUMBER
NUMERICAL VALUE
PERINEURAL INVASION
RADIOLOGICAL RESULT VERIFIED DATE
RADIOLOGICAL RESULT VERIFIED TIME
RESULT ITEM STATUS
SARCOMA RELATION TO DEEP FASCIA
SCREENING TEST RESULT
SMEAR INFECTION TYPE
SPECIMEN NATURE
SYNCHRONOUS TUMOUR INDICATOR

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NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE

Change to Attribute: New Attribute

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

The outcome/status following a Newborn Blood Spot Test.

National Codes:

01Specimen received in LABORATORY
02Screening declined
03Further sample required
04Condition not suspected
05Carrier
06Carrier of other haemoglobin
07Condition not suspected, other disorders follow up
08Condition suspected
09Not screened/screening incomplete
 

This attribute is also known by these names:
ContextAlias
pluralNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODES

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For enquiries about this Change Request, please email datastandards@nhs.net