Health and Social Care Information Centre

NHS Data Model and Dictionary Service

Type:Patch
Reference:1389
Version No:1.0
Subject:Clinical Data Sets Documentation Menu Patch
Effective Date:Immediate
Reason for Change:Patch
Publication Date:29 May 2013

Background:

This patch updates the NHS Data Model and Dictionary as follows:

To view a demonstration on "How to Read an NHS Data Model and Dictionary Change Request", visit the NHS Data Model and Dictionary help pages at: http://www.datadictionary.nhs.uk/Flash_Files/changerequest.htm.

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Summary of changes:

Supporting Information
CLINICAL DATA SETS MESSAGE DOCUMENTATION   Changed Description
HIV AND AIDS REPORTING DATA SET SUBMISSION REQUIREMENTS renamed from HARS DATA SET SUBMISSION REQUIREMENTS   Changed Name
WORK AND SOCIAL ADJUSTMENT SCALE   Changed Description
 
Data Elements
AGORAPHOBIA MOBILITY INVENTORY SCORE (WHEN ACCOMPANIED)   Changed Description
AGORAPHOBIA MOBILITY INVENTORY SCORE (WHEN ALONE)   Changed Description
AGORAPHOBIA SCORE   Changed Description
GENERALISED ANXIETY DISORDER PENN STATE WORRY SCORE   Changed Description
GENERALISED ANXIETY DISORDER SCORE   Changed Description
HEALTH ANXIETY INVENTORY SHORT WEEK SCALE SCORE   Changed Description
MORPHOLOGY (ICD-O AT START SYSTEMIC ANTI-CANCER THERAPY)   Changed Description
OBSESSIVE COMPULSIVE DISORDER INVENTORY SCORE   Changed Description
PANIC DISORDER SEVERITY SCALE SCORE   Changed Description
PHQ-9 QUESTION 1 SCORE   Changed Description
PHQ-9 QUESTION 2 SCORE   Changed Description
PHQ-9 QUESTION 3 SCORE   Changed Description
PHQ-9 QUESTION 4 SCORE   Changed Description
PHQ-9 QUESTION 5 SCORE   Changed Description
PHQ-9 QUESTION 6 SCORE   Changed Description
PHQ-9 QUESTION 7 SCORE   Changed Description
PHQ-9 QUESTION 8 SCORE   Changed Description
PHQ-9 QUESTION 9 SCORE   Changed Description
PHQ-9 TOTAL SCORE   Changed Description
PHYSICAL ACTIVITY LEVEL   Changed Description
POST TRAUMATIC STRESS DISORDER IMPACT OF EVENTS SCALE REVISED SCORE   Changed Description
SOCIAL PHOBIA INVENTORY SCORE   Changed Description
SOCIAL PHOBIA SCORE   Changed Description
TNM STAGE GROUPING (FINAL PRETREATMENT)   Changed Description
WORK AND SOCIAL ADJUSTMENT SCALE SCORE   Changed Description
 

Date:29 May 2013
Sponsor:Richard Kavanagh, Head of Data Standards - Interoperability Specifications, Health and Social Care Information Centre

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

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CLINICAL DATA SETS MESSAGE DOCUMENTATION

Change to Supporting Information: Changed Description

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HIV AND AIDS REPORTING DATA SET SUBMISSION REQUIREMENTS  renamed from HARS DATA SET SUBMISSION REQUIREMENTS

Change to Supporting Information: Changed Name

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WORK AND SOCIAL ADJUSTMENT SCALE

Change to Supporting Information: Changed Description

The Work and Social Adjustment Scale is a type of ASSESSMENT TOOL.

The Work and Social Adjustment Scale (W&SAS) is a simple 5-item self report measure which provides an experiential impact of a disorder from the PATIENT's point of view.  It looks at how the disorder impairs the PATIENT's ability to function day to day with depression and / or anxiety as well as phobic disorders.

It looks at how the disorder impairs the PATIENT's ability to function day to day with depression and / or anxiety as well as phobic disorders.

If a PATIENT has selected "non applicable" for question 1 or if one value is missing, then these scores can be substituted with the average score of the non-missing items. Questionnaires with more than one missing value should be disregarded. 

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AGORAPHOBIA MOBILITY INVENTORY SCORE (WHEN ACCOMPANIED)

Change to Data Element: Changed Description

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AGORAPHOBIA MOBILITY INVENTORY SCORE (WHEN ALONE)

Change to Data Element: Changed Description

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AGORAPHOBIA SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 

Notes:
AGORAPHOBIA SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Agoraphobia Questionnaire".AGORAPHOBIA SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Agoraphobia Questionnaire'.

The score will be between 0 and 8.

 

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GENERALISED ANXIETY DISORDER PENN STATE WORRY SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
GENERALISED ANXIETY DISORDER PENN STATE WORRY SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Generalised Anxiety Disorder Penn State Worry Questionnaire".GENERALISED ANXIETY DISORDER PENN STATE WORRY SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Generalised Anxiety Disorder Penn State Worry Questionnaire'.

The score will be between 16 and 80.

If one or two values are missing from the score, then they can be substituted with the average score of the non-missing items. Questionnaires with more than two missing values should be disregarded.

 

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GENERALISED ANXIETY DISORDER SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
GENERALISED ANXIETY DISORDER SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Generalised Anxiety Disorder Questionnaire".GENERALISED ANXIETY DISORDER SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Generalised Anxiety Disorder Questionnaire'.

The score will be between 0 and 21.

If one or two values are missing from the score, then they can be substituted with the average score of the non-missing items. Questionnaires with more than two missing values should be disregarded.

 

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HEALTH ANXIETY INVENTORY SHORT WEEK SCALE SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
HEALTH ANXIETY INVENTORY SHORT WEEK SCALE SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Health Anxiety Inventory Short Week Scale".HEALTH ANXIETY INVENTORY SHORT WEEK SCALE SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Health Anxiety Inventory Short Week Scale'.

The score will be between 0 and 54.

 

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MORPHOLOGY (ICD-O AT START SYSTEMIC ANTI-CANCER THERAPY)

Change to Data Element: Changed Description

Format/Length:min an5 - max an7
Format/Length:min an5 max an7
HES Item: 
National Codes: 
Default Codes: 

Notes:
MORPHOLOGY (ICD-O AT START SYSTEMIC ANTI-CANCER THERAPY) is the PATIENT DIAGNOSIS for the cell type at the start of a Systemic Anti-Cancer Drug Programme.

This is the PATIENT DIAGNOSIS using the International Classification of Diseases for Oncology (ICD-O) code.MORPHOLOGY (ICD-O AT START SYSTEMIC ANTI-CANCER THERAPY) is the PATIENT DIAGNOSIS using the International Classification of Diseases for Oncology (ICD-O) code.

 

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OBSESSIVE COMPULSIVE DISORDER INVENTORY SCORE

Change to Data Element: Changed Description

Format/Length:max n3
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Obsessive Compulsive Disorder Inventory Questionnaire".

OBSESSIVE COMPULSIVE DISORDER INVENTORY SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Obsessive Compulsive Disorder Inventory Questionnaire'.

The score will be between 0 and 168.

If one or two values are missing from the score, then they can be substituted with the average score of the non-missing items. Questionnaires with more than two missing values should be disregarded.

 

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PANIC DISORDER SEVERITY SCALE SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
This is the PERSON SCORE for an APPOINTMENT  where the ASSESSMENT TOOL TYPE  is "Panic Disorder Severity Scale".PANIC DISORDER SEVERITY SCALE SCORE is the PERSON SCORE for an APPOINTMENT  where the ASSESSMENT TOOL TYPE  is 'Panic Disorder Severity Scale'.

The score will be between 0 and 28.

 

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PHQ-9 QUESTION 1 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 1 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 1 SCORE is the PERSON SCORE for question 1 of the Patient Health Questionnaire-9. 

The question relates to having little interest or pleasure in doing things.

 

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PHQ-9 QUESTION 2 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 2 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 2 SCORE is the PERSON SCORE for question 2 of the Patient Health Questionnaire-9. 

The question relates to feeling down, depressed or hopeless.

 

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PHQ-9 QUESTION 3 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 3 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 3 SCORE is the PERSON SCORE for question 3 of the Patient Health Questionnaire-9. 

The question relates to trouble falling or staying asleep, or sleeping too much.

 

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PHQ-9 QUESTION 4 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 4 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 4 SCORE is the PERSON SCORE for question 4 of the Patient Health Questionnaire-9. 

The question relates to feeling tired or having little energy.

 

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PHQ-9 QUESTION 5 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 5 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 5 SCORE is the PERSON SCORE for question 5 of the Patient Health Questionnaire-9. 

The question relates to poor appetite or overeating.

 

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PHQ-9 QUESTION 6 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 6 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 6 SCORE is the PERSON SCORE for question 6 of the Patient Health Questionnaire-9. 

The question relates to feeling bad about yourself - or that you are a failure or have let yourself or your family down.

 

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PHQ-9 QUESTION 7 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 1 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 7 SCORE is the PERSON SCORE for question 1 of the Patient Health Questionnaire-9. 

The question relates to having trouble concentrating on things, such as reading the newspaper or watching television.

 

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PHQ-9 QUESTION 8 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 8 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 8 SCORE is the PERSON SCORE for question 8 of the Patient Health Questionnaire-9. 

The question relates to moving or speaking so slowly that other people could have noticed, or the opposite - being so fidgety or restless that you have been moving around a lot more than usual.

 

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PHQ-9 QUESTION 9 SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 


Notes:
This is the PERSON SCORE for question 9 of the Patient Health Questionnaire-9.PHQ-9 QUESTION 9 SCORE is the PERSON SCORE for question 9 of the Patient Health Questionnaire-9. 

The question relates to thoughts that you would be better off dead, or of hurting yourself in some way.

 

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PHQ-9 TOTAL SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
This is the total PERSON SCORE for the Patient Health Questionnaire-9, calculated by adding together the scores from questions 1 - 9.PHQ-9 TOTAL SCORE is the total PERSON SCORE for the Patient Health Questionnaire-9, calculated by adding together the scores from questions 1 - 9.

The total PERSON SCORE can range from 0 to 27.

 

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PHYSICAL ACTIVITY LEVEL

Change to Data Element: Changed Description

Format/Length:an1
HES Item: 
National Codes:See PHYSICAL ACTIVITY LEVEL.
Default Codes: 


Notes:
PHYSICAL ACTIVITY LEVEL is the same as attribute PHYSICAL ACTIVITY LEVEL.

 

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POST TRAUMATIC STRESS DISORDER IMPACT OF EVENTS SCALE REVISED SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
This is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Post Traumatic Stress Disorder Impacts of Events Revised Scale".POST TRAUMATIC STRESS DISORDER IMPACT OF EVENTS SCALE REVISED SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Post Traumatic Stress Disorder Impacts of Events Revised Scale'.

The score will be between 0 and 88.

If one or two values are missing from the score, then they can be substituted with the average score of the non-missing items. Questionnaires with more than two missing values should be disregarded.

 

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SOCIAL PHOBIA INVENTORY SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
This is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Social Phobia Inventory Questionnaire".SOCIAL PHOBIA INVENTORY SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Social Phobia Inventory Questionnaire'.

The score will be between 0 and 68.

 

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SOCIAL PHOBIA SCORE

Change to Data Element: Changed Description

Format/Length:n1
HES Item: 
National Codes: 
Default Codes: 

Notes:
This is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Social Phobia Questionnaire".SOCIAL PHOBIA SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Social Phobia Questionnaire'.

The score will be between 0 and 8.

 

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TNM STAGE GROUPING (FINAL PRETREATMENT)

Change to Data Element: Changed Description

Format/Length:max an5
HES Item: 
National Codes: 
Default Codes: 

Notes:
TNM STAGE GROUPING (FINAL PRETREATMENT) is the same as attribute CLINICAL CLASSIFICATION CODE.

TNM STAGE GROUPING (FINAL PRETREATMENT) is the Union for International Cancer Control (UICC) which classifies the combination of Tumour, node and metastases into stage groupings before treatment.TNM STAGE GROUPING (FINAL PRETREATMENT) is the Union for International Cancer Control (UICC) code which classifies the combination of Tumour, node and metastases into stage groupings before treatment.

TNM STAGE GROUPING (FINAL PRETREATMENT) replaces TNM CATEGORY (FINAL PRETREATMENT) and should be used for all new and developing data sets and for XML messages.

 

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WORK AND SOCIAL ADJUSTMENT SCALE SCORE

Change to Data Element: Changed Description

Format/Length:max n2
HES Item: 
National Codes: 
Default Codes: 

Notes:
WORK AND SOCIAL ADJUSTMENT SCALE SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is "Work and Social Adjustment Scale".WORK AND SOCIAL ADJUSTMENT SCALE SCORE is the PERSON SCORE for an APPOINTMENT where the ASSESSMENT TOOL TYPE is 'Work and Social Adjustment Scale'.

The score will be between 0 and 40.

If a PATIENT has selected "not applicable" for question 1 or if one value is missing, then theses scores can be substituted with the average score of the non-missing items. Questionnaires with more than one missing value should be disregarded.

 

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For enquiries about this Change Request, please email information.standards@hscic.gov.uk