NHS Data Model and DictionaryNHS Digital
Type:Patch
Reference:1691
Version No:1.0
Subject:October 2018 Release Patch
Effective Date:Immediate
Reason for Change:Patch
Publication Date:22 October 2018

Background:

This patch updates the NHS Data Model and Dictionary in preparation for the October 2018 Release and includes:

To view a demonstration on "How to Read an NHS Data Model and Dictionary Change Request", visit the NHS Data Model and Dictionary help pages at: http://www.datadictionary.nhs.uk/Flash_Files/changerequest.htm.

Note: if the web page does not open, please copy the link and paste into the web browser.

Summary of changes:

Data Set
NATIONAL RENAL DATA SET - ADMINISTRATION   Changed Description
NATIONAL RENAL DATA SET - DEMOGRAPHICS   Changed Description
NATIONAL RENAL DATA SET - DIALYSIS   Changed Description
NATIONAL RENAL DATA SET - DIETETICS   Changed Description
NATIONAL RENAL DATA SET - PAEDIATRICS   Changed Description
NATIONAL RENAL DATA SET - PRESCRIBED ITEMS   Changed Description
NATIONAL RENAL DATA SET - RENAL CARE   Changed Description
NATIONAL RENAL DATA SET - TRANSPLANT   Changed Description
 
Supporting Information
CLINICAL DATA SETS MESSAGE DOCUMENTATION   Changed Description
CLINICAL DATA SETS MESSAGE DOCUMENTATION MENU   Changed Description
NATIONAL RENAL DATA SET INTRODUCTION   Changed Description
NATIONAL RENAL DATA SET OVERVIEW   Changed Description
SUPPORTING DATA SETS MESSAGE DOCUMENTATION   Changed Description
SUPPORTING DATA SETS MESSAGE DOCUMENTATION MENU   Changed Description
WHAT'S NEW: OCTOBER 2018 renamed from WHAT'S NEW: SEPTEMBER 2018   Changed Name, Description
 
Attribute Definitions
GESTATION LENGTH IN DAYS   Changed Description
IMMUNISATION AGE GROUP   Changed Description
 
Data Elements
ANATOMICAL SIDE (NATIONAL JOINT REGISTRY)   Changed linked Attribute, Description
ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE (NATIONAL JOINT REGISTRY)   Changed linked Attribute, Description
CONSULTANT CODE   Changed Description
CONSULTANT CODE (FIRST SEEN)   Changed Description
CONSULTANT CODE (INITIATED SYSTEMIC ANTI-CANCER THERAPY)   Changed Description
CONSULTANT CODE (MULTIDISCIPLINARY TEAM LEAD)   Changed Description
CONSULTANT CODE (PATHOLOGIST)   Changed Description
CONSULTANT CODE (RESPONSIBLE CONSULTANT)   Changed Description
CONSULTANT CODE (RESPONSIBLE SURGEON)   Changed Description
CONSULTANT CODE (TREATMENT)   Changed Description
NHS NUMBER   Changed Description
PDS ETHNIC CATEGORY CODE   Changed Description
PERSON STATED GENDER CODE (NATIONAL JOINT REGISTRY)   Changed linked Attribute, Description
WITHHELD IDENTITY REASON   Changed Description
 

Date:22 October 2018
Sponsor:Alex Elias, Information Representation Services Director, NHS Digital

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

Click here for a printer friendly view of this page.


NATIONAL RENAL DATA SET - ADMINISTRATION

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

This section specifies data items concerning admission, discharge, referral, listing for surgery and PATIENT transport.

Data Set Data Elements
General provider details.
START DATE (HOSPITAL PROVIDER SPELL) 
DISCHARGE DESTINATION CODE (HOSPITAL PROVIDER SPELL)
General reporting details.
RENAL REGISTRATION NUMBER 
SCOTTISH RENAL REGISTRY NUMBER 
Referral details.
To carry the details of the first referral to a consultant working from a renal unit providing renal replacement therapy, leading to continuous follow up.
REFERRING ORGANISATION CODE 
REFERRER CODE 
SOURCE OF REFERRAL FOR OUT-PATIENTS
REFERRAL REQUEST RECEIVED DATE 
REFERRAL REQUEST RECEIVED DATE (FIRST RENAL REFERRAL) 
DATE FIRST SEEN (RENAL PHYSICIAN) 
Transport details.
To carry the details of the transport usage per dialysis appointment
Many occurrences of this group are permitted.
APPOINTMENT DATE AND TIME 
PATIENT TRANSPORT JOURNEY DATE AND TIME (PICKUP) 
PATIENT TRANSPORT JOURNEY DATE AND TIME (ARRIVAL) 
START DATE AND TIME (RENAL DIALYSIS) 
END DATE AND TIME (RENAL DIALYSIS) 
PATIENT TRANSPORT JOURNEY DATE AND TIME (RETURN PICKUP) 
PATIENT TRANSPORT JOURNEY DATE AND TIME (RETURN ARRIVAL) 
PATIENT TRANSPORT JOURNEY PROVIDER TYPE (RENAL DIALYSIS) 

top


NATIONAL RENAL DATA SET - DEMOGRAPHICS

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

Items that are marked * were not approved by the Information Standards Board for Health and Social Care as they are under review and will be defined at a later version.

This section contains data items to capture PATIENT identifiers, demographic information and organisational data.

Data Set Data Elements
Person Demographics.
To carry the demographic details of the patient.
NHS NUMBER 
LOCAL PATIENT IDENTIFIER 
PERSON FAMILY NAME 
PERSON GIVEN NAME 
PERSON BIRTH DATE 
PAEDIATRIC PATIENT INDICATOR *
PERSON GENDER CODE CURRENT
ETHNIC CATEGORY 
PATIENT USUAL ADDRESS 
POSTCODE OF USUAL ADDRESS 
PATIENT USUAL ADDRESS (AT CHRONIC KIDNEY DISEASE DIAGNOSIS) 
POSTCODE OF USUAL ADDRESS (AT CHRONIC KIDNEY DISEASE DIAGNOSIS) 
GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION) 
ORGANISATION CODE (RESPONSIBLE PCT) 
SITE CODE (OF PRIMARY RENAL UNIT PROVIDER) 
RENAL DIALYSIS CENTRE PRIMARY OR SECONDARY INDICATOR 

top


NATIONAL RENAL DATA SET - DIALYSIS

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

Items that are marked * were not approved by the Information Standards Board for Health and Social Care as they are under review and will be defined at a later version.

The data items in this section apply only to PATIENTS receiving kidney Renal Dialysis. The section contains items such as PATIENT observations relevant to their Renal Dialysis treatment and adequacy, complications and procedures to construct access.

Data Set Data Elements
General dialysis details.
To carry the general dialysis details for the patient.
ORGANISATION CODE (DIALYSIS CENTRE) 
RENAL DIALYSIS ACCESS TYPE (FIRST) 
General diagnosis details.
To carry the general diagnosis details for the patient.
DIAGNOSIS DATE (VASCULAR OR PERITONEAL DEFINITIVE ACCESS FAILED)
RENAL CATHETER OR ACCESS LOST INDICATOR *
General dialysis observation details.
To carry the general dialysis observations for the patient.
WHOLE BLOOD MEAN CORPUSCULAR HAEMOGLOBIN (DIALYSIS)
OBSERVATION DATE (WHOLE BLOOD MEAN CORPUSCULAR HAEMOGLOBIN)
WHOLE BLOOD MEAN CELL VOLUME (DIALYSIS)
OBSERVATION DATE (WHOLE BLOOD MEAN CELL VOLUME)
HAEMOGLOBIN CONCENTRATION (PRIOR END STAGE RENAL FAILURE)
NORMALISED PROTEIN CATABOLIC RATE (DIALYSIS)
OBSERVATION DATE (NORMALISED PROTEIN CATABOLIC RATE)
URINE UREA CONCENTRATION
OBSERVATION DATE (URINE UREA CONCENTRATION)
URINE CREATININE CONCENTRATION
OBSERVATION DATE (URINE CREATININE CONCENTRATION) 
URINE Kt/V
OBSERVATION DATE (URINE Kt/V)
URINE VOLUME
OBSERVATION DATE (URINE VOLUME)
Dialysis Access.
To carry the details of dialysis access procedures. Each patient may have zero or more access procedures. All access procedures should be recorded.
REFERRAL REQUEST RECEIVED DATE (DIALYSIS ACCESS CONSTRUCTION) 
PROCEDURE DATE (DIALYSIS ACCESS CONSTRUCTION) 
RENAL DIALYSIS ACCESS TYPE 
PROCEDURE SIDE (DIALYSIS ACCESS CONSTRUCTION) 
PROCEDURE SITE (DIALYSIS ACCESS CONSTRUCTION) 
ANAESTHETIC METHOD TYPE (DIALYSIS ACCESS CONSTRUCTION) 
REMOVAL DATE (DIALYSIS ACCESS) 
REMOVAL REASON TYPE (DIALYSIS ACCESS) 
GRAFT MATERIAL TYPE (ARTERIOVENOUS) 
PERITONEAL DIALYSIS CATHETER TYPE 
PERITONEAL DIALYSIS CATHETER INSERTION TECHNIQUE 
Dialysis Access Surveillance.
Each dialysis access may have many surveillances recorded. Record all surveillance per access.
SURVEILLANCE DATE (DIALYSIS ACCESS) 
SURVEILLANCE TECHNIQUE (DIALYSIS ACCESS) 
Dialysis Access Complication.
Each dialysis access may have many complications recorded. Record all surveillance per access.
COMPLICATION DATE (RENAL DIALYSIS ACCESS) 
COMPLICATION TYPE (RENAL DIALYSIS ACCESS) 
Dialysis Access procedures or repairs.
Each dialysis access may have many access procedures or repairs recorded. Record all surveillance per access.
PROCEDURE DATE (DIALYSIS ACCESS REPAIR OR REVISION) 
PROCEDURE (DIALYSIS ACCESS REPAIR OR REVISION) 
Haemodialysis general details.
To carry the general details of haemodialysis (HD) patients.
One occurrence of this group is permitted.
RENAL DIALYSIS EPISODES PER WEEK 
PRESCRIBED DOSE (HAEMODIALYSIS MINUTES PER EPISODE) 
ACTUAL DOSE (HAEMODIALYSIS MINUTES LAST EPISODE) 
BLOOD FLOW RATE (DIALYSIS)
DIALYSATE FLOW RATE (DIALYSIS)
RENAL DIALYSIS DATE (PRE AND POST RENAL DIALYSIS MEASURES APPLICABLE)
MANUFACTURERS NAME (DIALYSER) 
DIALYSER REUSED INDICATOR *
Haemodialysis observation details.
To carry the observation details for haemodialysis patients.
DOMINANT ARM CODE
PERSON WEIGHT (PRE-DIALYSIS)
PERSON WEIGHT (POST DIALYSIS)
DIASTOLIC BLOOD PRESSURE (PRE-HAEMODIALYSIS)
SYSTOLIC BLOOD PRESSURE (PRE-HAEMODIALYSIS)
OBSERVATION DATE (BLOOD PRESSURE PRE-HAEMODIALYSIS) 
DIASTOLIC BLOOD PRESSURE (POST HAEMODIALYSIS)
SYSTOLIC BLOOD PRESSURE (POST HAEMODIALYSIS)
SERUM CREATININE CONCENTRATION (PRE-DIALYSIS)
HAEMOGLOBIN CONCENTRATION (PRE-DIALYSIS)
SERUM UREA CONCENTRATION (PRE-DIALYSIS)
SERUM UREA CONCENTRATION (POST DIALYSIS)
Peritoneal Dialysis Prescriptions.
To carry the details of the treatment regime for peritoneal dialysis patients.
PERITONEAL DIALYSIS TREATMENT REGIME 
START DATE (PERITONEAL DIALYSIS TREATMENT REGIME) 
PRESCRIBED ITEM (VOLUME OF 1.36% GLUCOSE FLUID)
PRESCRIBED ITEM (VOLUME OF 2.27% GLUCOSE FLUID)
PRESCRIBED ITEM (VOLUME OF 3.86% GLUCOSE FLUID)
PRESCRIBED ITEM (VOLUME OF AMINO ACID DIALYSIS FLUID)
PRESCRIBED ITEM (VOLUME OF ICODEXTRIN DIALYSIS FLUID)
PRESCRIBED ITEM (LOW GLUCOSE DEGRADATION PRODUCT DIALYSIS FLUID) *
PRESCRIBED ITEM (LOW SODIUM GLUCOSE DIALYSIS FLUID) *
PERITONEAL DIALYSIS FLUID MANUFACTURERS NAME 
PRESCRIBED ITEM VOLUME USAGE PER OVERNIGHT (PERITONEAL DIALYSIS FLUID ON AUTOMATED PERITONEAL DIALYSIS) 
PRESCRIBED ITEM SIZE (PERITONEAL BAG) 
SUPPLEMENTARY HAEMODIALYSIS INDICATOR *
Peritoneal dialysis diagnosis details.
To carry the diagnosis details for peritoneal dialysis patients.
DIAGNOSIS PERITONITIS *
DIAGNOSIS DATE (PERITONITIS)
PERITONITIS ORGANISM 1 (READ) 
PERITONITIS ORGANISM 2 (READ) 
START DATE (TREATMENT FOR DIALYSIS RELATED INFECTION) 
END DATE (TREATMENT FOR DIALYSIS RELATED INFECTION) 
Peritoneal dialysis procedure details.
To carry the procedure details for peritoneal dialysis patients.
PROCEDURE (NET DAILY ULTRAFILTRATION) 
OBSERVATION DATE (NET DAILY ULTRAFILTRATION)
Peritoneal dialysis observation details.
To carry the observation details for peritoneal dialysis patients.
PERITONEAL DIALYSIS TOTAL WEEKLY FLUID VOLUME
OBSERVATION DATE (PERITONEAL DIALYSIS TOTAL WEEKLY FLUID VOLUME) 
DIALYSATE 24 HOUR VOLUME
OBSERVATION DATE (DIALYSATE 24 HOUR VOLUME)
DIALYSATE 24 HOUR CREATININE CONCENTRATION
OBSERVATION DATE (DIALYSATE 24 HOUR CREATININE CONCENTRATION)
DIALYSATE 24 HOUR PROTEIN LOSS
OBSERVATION DATE (DIALYSATE 24 HOUR PROTEIN LOSS)
DIALYSATE 24 HOUR UREA CONCENTRATION
OBSERVATION DATE (DIALYSATE 24 HOUR UREA CONCENTRATION)
Peritoneal Equilibration Test.
To carry the details of the observations for Peritoneal Equilibration Tests.
OBSERVATION DATE (PERITONEAL EQUILIBRATION TEST)
DIALYSATE CREATININE PLASMA RATIO (4 HOUR)
DIALYSATE EFFLUENT VOLUME (4 HOUR)
DIALYSATE GLUCOSE START OF DWELL (4 HOUR)
DIALYSATE GLUCOSE END OF DWELL (4 HOUR)
Other peritoneal dialysis observations.
To carry the details of other observations for peritoneal dialysis patients.
COMBINED Kt/V
OBSERVATION DATE (COMBINED Kt/V)
DIALYSATE Kt/V
OBSERVATION DATE (DIALYSATE Kt/V)
NORMALISED WEEKLY PERITONEAL CREATININE CLEARANCE
OBSERVATION DATE (NORMALISED WEEKLY PERITONEAL CREATININE CLEARANCE)
RESIDUAL RENAL CREATININE CLEARANCE
OBSERVATION DATE (RESIDUAL RENAL CREATININE CLEARANCE) 
SERUM CREATININE Kt/V
OBSERVATION DATE (SERUM CREATININE Kt/V)
WHITE BLOOD CELL COUNT (PERITONEAL FLUID)
OBSERVATION DATE (WHITE BLOOD CELL COUNT) 

top


NATIONAL RENAL DATA SET - DIETETICS

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

This section contains data items to capture nutrition assessment and dietary requirements/advice.

Data Set Data Elements
Dietetics Observations.
To carry the details of observations recorded during the nutritional assessment. Note that the observation date is the Activity Date (Nutritional Assessment).
ACTIVITY DATE (NUTRITIONAL ASSESSMENT) 
PERSON HEIGHT IN CENTIMETRES
PERSON WEIGHT (RENAL CARE)
BODY MASS INDEX
PERCENTAGE WEIGHT LOSS
MID ARM CIRCUMFERENCE
WAIST MEASUREMENT
HIP MEASUREMENT
SUBJECTIVE GLOBAL ASSESSMENT 
ESTIMATED PROTEIN INTAKE 
ESTIMATED ENERGY INTAKE 
HAND GRIP STRENGTH
ESTIMATED POTASSIUM INTAKE 
ESTIMATED SALT INTAKE 
ESTIMATED PHOSPHATE INTAKE 
DIETARY ADVICE REASON CODE 

top


NATIONAL RENAL DATA SET - PAEDIATRICS

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

Items that are marked * were not approved by the Information Standards Board for Health and Social Care as they are under review and will be defined at a later version.

This section specifies items applicable only to paediatric renal PATIENTS.

Data Set Data Elements
Paediatric general details.
To carry the general details for paediatric patients.
REGISTRATION DATE (BRITISH ASSOCIATION FOR PAEDIATRIC NEPHROLOGY) 
PAEDIATRIC NEPHROLOGY REGISTRY STATUS CODE 
RENAL TREATMENT MODALITY AT DAY 90 CODE 
PERSON RELATIONSHIP GENETICALLY RELATED INDICATOR *
SINGLE CARER SUPPORT INDICATOR * 
PROCEDURE INDICATOR (GROWTH HORMONE ADMINISTERED) *
PRESCRIBED DOSE (GROWTH HORMONE) 
PROCEDURE DATE (GROWTH HORMONE ADMINISTRATION) 
Diagnosis details.
To carry the diagnosis details for paediatric patients up to the start of End Stage Renal Failure.
DIAGNOSIS ANTENATAL AT END STAGE RENAL FAILURE (RENAL PAEDIATRIC) *
PROCEDURE INDICATOR (ANTENATAL TREATMENT) *
PROCEDURE DATE (ANTENATAL TREATMENT)
PRETERM INDICATOR (RENAL PAEDIATRIC) *
NUMBER OF WEEKS PRETERM
DIAGNOSIS DIABETES (RENAL PAEDIATRIC) *
DIAGNOSIS MALIGNANCY (RENAL PAEDIATRIC) *
DIAGNOSIS CEREBRAL PALSY (RENAL PAEDIATRIC) *
DIAGNOSIS DATE (CEREBRAL PALSY)
DIAGNOSIS CONGENITAL HEART DISEASE (RENAL PAEDIATRIC) *
DIAGNOSIS DATE (CONGENITAL HEART DISEASE) 
DIAGNOSIS NEURAL TUBE DEFECT (RENAL PAEDIATRIC)  *
DIAGNOSIS DATE (NEURAL TUBE DEFECT)
DIAGNOSIS DEVELOPMENTAL OR EDUCATIONAL HANDICAP (RENAL PAEDIATRIC) *
DIAGNOSIS DATE (DEVELOPMENT OR EDUCATIONAL HANDICAP) 
DIAGNOSIS LIVER DISEASE END STAGE RENAL FAILURE (RENAL PAEDIATRIC) *
DIAGNOSIS DOWNS SYNDROME (RENAL PAEDIATRIC)*
DIAGNOSIS DATE (DOWNS SYNDROME)
DIAGNOSIS OTHER CHROMOSOMAL ABNORMALITIES (RENAL PAEDIATRIC) *
DIAGNOSIS DATE (OTHER CHROMOSOMAL ABNORMALITIES)
DIAGNOSIS CONGENITAL ANOMALY (RENAL PAEDIATRIC) *
DIAGNOSIS DATE (CONGENITAL ABNORMALITY)
DIAGNOSIS OTHER SYNDROMAL DIAGNOSIS (RENAL PAEDIATRIC) *
DIAGNOSIS DATE (OTHER SYNDROMAL DIAGNOSIS) 
DIAGNOSIS PSYCHIATRIC DISORDER (RENAL PAEDIATRIC) *
DIAGNOSIS PSYCHOLOGICAL DISORDER (RENAL PAEDIATRIC) * 
PERSON PROPERTY FAMILY HISTORY (RENAL DISEASE) *
PERSON PROPERTY FAMILY HISTORY (END STAGE RENAL FAILURE) *
ORGAN OR TISSUE RECIPIENT TRANSPLANT INDICATOR (KIDNEY) *
ORGAN OR TISSUE RECIPIENT TRANSPLANT INDICATOR (PANCREAS) *
ORGAN OR TISSUE RECIPIENT TRANSPLANT INDICATOR (LIVER) *
ORGAN OR TISSUE RECIPIENT TRANSPLANT INDICATOR (HEART) * 
ORGAN OR TISSUE RECIPIENT TRANSPLANT INDICATOR (LUNGS) * 
ORGAN OR TISSUE RECIPIENT TRANSPLANT INDICATOR (SMALL INTESTINE) * 
RENAL REASON FOR NO TREATMENT CODE 
RENAL TREATMENT MODALITY NO TREATMENT REASON DATE 
IMPAIRMENT CODE (VISUAL HANDICAP) 
IMPAIRMENT CODE (AUDITORY HANDICAP) 
IMPAIRMENT CODE (PHYSICAL HANDICAP) 
IMPAIRMENT CODE (INTELLECTUAL HANDICAP) 
START DATE (RENAL PAEDIATRIC TRANSITION PROGRAMME) 
END DATE (RENAL PAEDIATRIC TRANSITION PROGRAMME) 
Paediatric observation details.
To carry the observation details for paediatric patients.
BONE AGE (RENAL PAEDIATRIC)
OBSERVATION DATE (BONE AGE) 
HEAD CIRCUMFERENCE (RENAL PAEDIATRIC)
OBSERVATION DATE (HEAD CIRCUMFERENCE)
RESIDUAL URINE OUTPUT (RENAL PAEDIATRIC) *
OBSERVATION DATE (RESIDUAL URINE OUTPUT)
NUMBER OF NATIVE KIDNEYS AT TRANSPLANTATION
RENAL TREATMENT MODALITY AT DEATH CODE 
DEATH DETAILS GENERAL COMMENT 
PLATELETS COUNT
OBSERVATION DATE (PLATELETS COUNT)
NUMBER OF DAYS PER WEEK OF PERITONEAL DIALYSIS 

top


NATIONAL RENAL DATA SET - PRESCRIBED ITEMS

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

Items that are marked * were not approved by the Information Standards Board for Health and Social Care as they are under review and will be defined at a later version.

This section captures indicators on the prescription of various medications and items specific to renal care and their dosages.

Data Set Data Elements
Medication Dosages.
To carry the details of medication dosages prescribed for renal patients.
PRESCRIBED DOSE (ANTI-HUMAN T-LYMPHOCYTE GLOBULIN)
PRESCRIPTION DATE (ANTI-HUMAN T-LYMPHOCYTE GLOBULIN)
PRESCRIBED DOSE (ANTITHYMOCYTE GLOBULIN)
PRESCRIPTION DATE (ANTITHYMOCYTE GLOBULIN)
PRESCRIBED DOSE (AZATHIOPRINE)
PRESCRIBED FREQUENCY (AZATHIOPRINE)
PRESCRIBED TOTAL DAILY DOSE (AZATHIOPRINE)
PRESCRIPTION DATE (AZATHIOPRINE)
PRESCRIBED DOSE (CICLOSPORIN)
PRESCRIBED FREQUENCY (CICLOSPORIN)
PRESCRIBED TOTAL DAILY DOSE (CICLOSPORIN)
PRESCRIPTION DATE (CICLOSPORIN)
PRESCRIBED DOSE (MYCOPHENOLATE MOFETIL)
PRESCRIBED FREQUENCY (MYCOPHENOLATE MOFETIL)
PRESCRIBED TOTAL DAILY DOSE (MYCOPHENOLATE MOFETIL)
PRESCRIPTION DATE (MYCOPHENOLATE MOFETIL)
PRESCRIBED DOSE (MYCOPHENOLATE SODIUM)
PRESCRIBED FREQUENCY (MYCOPHENOLATE SODIUM)
PRESCRIBED TOTAL DAILY DOSE (MYCOPHENOLATE SODIUM)
PRESCRIPTION DATE (MYCOPHENOLATE SODIUM)
PRESCRIBED DOSE (MUROMONAB-CD3)
PRESCRIPTION DATE (MUROMONAB-CD3)
PRESCRIBED DOSE (PREDNISOLONE OR PREDNISONE)
PRESCRIBED TOTAL DAILY DOSE (PREDNISOLONE OR PREDNISONE)
PRESCRIPTION DATE (PREDNISOLONE OR PREDNISONE)
PRESCRIBED DOSE (SIROLIMUS)
PRESCRIBED FREQUENCY (SIROLIMUS)
PRESCRIBED TOTAL DAILY DOSE (SIROLIMUS)
PRESCRIPTION DATE (SIROLIMUS)
PRESCRIBED DOSE (TACROLIMUS)
PRESCRIBED FREQUENCY (TACROLIMUS)
PRESCRIBED TOTAL DAILY DOSE (TACROLIMUS)
PRESCRIPTION DATE (TACROLIMUS)
PRESCRIBED MEDICATION (BASILIXIMAB) *
PRESCRIBED DOSE (BASILIXIMAB)
PRESCRIBED TOTAL DAILY DOSE (BASILIXIMAB)
PRESCRIPTION DATE (BASILIXIMAB)
PRESCRIBED MEDICATION (DACLIZUMAB) *
PRESCRIBED DOSE (DACLIZUMAB)
PRESCRIBED TOTAL DAILY DOSE (DACLIZUMAB)
PRESCRIPTION DATE (DACLIZUMAB)
PRESCRIBED MEDICATION (ALEMTUZUMAB) *
PRESCRIBED DOSE (ALEMTUZUMAB)
PRESCRIBED TOTAL DAILY DOSE (ALEMTUZUMAB)
PRESCRIPTION DATE (ALEMTUZUMAB)
Medication Indicators.
To carry the details of the medication indicators prescribed for renal patients.
PRESCRIBED MEDICATION (ANTICOAGULANT) *
PRESCRIPTION DATE (ANTICOAGULANT)
PRESCRIPTION DATE (OTHER MONOCLONAL ANTIBODY)
PRESCRIBED MEDICATION (HEPARIN SUBCUTANEOUS PROPHYLAXIS) *
PRESCRIPTION DATE (HEPARIN SUBCUTANEOUS PROPHYLAXIS)
PRESCRIBED MEDICATION (INSULIN) *
PRESCRIPTION DATE (INSULIN)
PRESCRIBED MEDICATION (INTRAPERITONEAL ANTIBIOTICS) *
PRESCRIPTION DATE (INTRAPERITONEAL ANTIBIOTICS)
PRESCRIBED MEDICATION (INTRAVENOUS ANTIBIOTICS) *
PRESCRIPTION DATE (INTRAVENOUS ANTIBIOTICS)
PRESCRIBED MEDICATION (THROMBOSIS PREVENTION DRUG) *
PRESCRIPTION DATE (THROMBOSIS PREVENTION DRUG)
PRESCRIBED MEDICATION (PHOSPHATE BINDERS) *
PRESCRIPTION DATE (PHOSPHATE BINDERS)
PRESCRIBED MEDICATION (INTRAVENOUS IRON) *
PRESCRIPTION DATE (INTRAVENOUS IRON)
PRESCRIBED MEDICATION (PROTON PUMP INHIBITORS) *
PRESCRIPTION DATE (PROTON PUMP INHIBITORS)
PRESCRIBED MEDICATION (CYTOMEGALOVIRUS TREATMENT) * 
PRESCRIBED MEDICATION (CYTOMEGALOVIRUS MEDICATION TYPE)
PRESCRIPTION DATE (CYTOMEGALOVIRUS TREATMENT)
PRESCRIBED MEDICATION (ANTI-FUNGAL PROPHYLAXIS) *
PRESCRIPTION DATE (ANTI-FUNGAL PROPHYLAXIS)
PRESCRIBED MEDICATION (DEEP VEIN THROMBOSIS PROPHYLAXIS DONOR) *
PRESCRIBED MEDICATION (DEEP VEIN THROMBOSIS PROPHYLAXIS TYPE) *
PRESCRIPTION DATE (DEEP VEIN THROMBOSIS PROPHYLAXIS)
Erythropoietin Stimulating Agents.
To carry the details of the erythropoietin stimulating agent prescribed for renal patients.
PRESCRIBED MEDICATION (ERYTHROPOIETIN) *
START DATE (ERYTHROPOIETIN EPISODE)
END DATE (ERYTHROPOIETIN EPISODE)
PRESCRIBED ITEM (ERYTHROPOIETIN READ CODE) 
DOSE FREQUENCY (ERYTHROPOIETIN STIMULATING AGENTS) 
TRANSFUSED UNITS PER PERIOD (ERYTHROPOIETIN) 
Medication indicators and doses collected on initial transplant forms.
These items are only collected on the initial transplant forms.
PRESCRIBED MEDICATION (ANTI-HUMAN T-LYMPHOCYTE GLOBULIN) *
PRESCRIBED MEDICATION (AZATHIOPRINE) *
PRESCRIBED MEDICATION (CICLOSPORIN) *
PRESCRIBED MEDICATION (MYCOPHENOLATE MOFETIL) *
PRESCRIBED MEDICATION (MYCOPHENOLATE SODIUM) *
PRESCRIBED MEDICATION (MUROMONAB-CD3) *
PRESCRIBED MEDICATION (PREDNISOLONE OR PREDNISONE) *
PRESCRIBED MEDICATION (SIROLIMUS) *
PRESCRIBED MEDICATION (TACROLIMUS) *
PRESCRIBED MEDICATION (OTHER MONOCLONAL ANTIBODY) *
Non-Medicated prescribed items.
This group contains non-medication prescription details as prescribed for renal patients.
PRESCRIBED ITEM (THROMBO EMBOLISM DETERRENT STOCKING) *
PRESCRIPTION DATE (THROMBO EMBOLISM DETERRENT STOCKING)

top


NATIONAL RENAL DATA SET - RENAL CARE

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

Items that are marked * were not approved by the Information Standards Board for Health and Social Care as they are under review and will be defined at a later version.

This is a general nephrology section capturing a wide range of data. It includes a PATIENT’s treatment, procedures, co-morbidities, test results and observations.

Data Set Data Elements
Patient History.
To carry the details of the patient history.
RENAL TREATMENT MODALITY CODE 
START DATE (RENAL TREATMENT MODALITY) 
END DATE (RENAL TREATMENT MODALITY) 
RENAL TREATMENT MODALITY CHANGE REASON CODE 
PROCEDURE DATE (FIRST END STAGE RENAL FAILURE TREATMENT) 
RENAL TREATMENT PRIMARY SUPERVISION CODE 
RENAL DIALYSIS SCHEDULE TYPE 
PERSON DEATH DATE 
DEATH CAUSE CODE (EUROPEAN DIALYSIS AND TRANSPLANT ASSOCIATION CLASSIFICATION) 
DEATH CAUSE COMMENT 
Patient Diagnosis.
To carry the details of the patient diagnosis. Use European Dialysis and Transplant Association diagnosis scheme to document the primary renal disease.
PRIMARY RENAL DISEASE DIAGNOSIS 
PRIMARY DIAGNOSIS DATE (RENAL DISEASE) 
PRIMARY RENAL DISEASE TEXT 
DIAGNOSIS INDICATOR (END STAGE RENAL FAILURE) * 
Secondary causes of end stage renal failure.
Up to 3 occurrences of secondary renal diagnosis codes are permitted. The diagnosis scheme should be used for this section as declared in the field.
DIAGNOSIS SCHEME IN USE (RENAL) 
SECONDARY CAUSE OF END STAGE RENAL FAILURE 
Patient Co-morbidities.
To carry the details of the co-morbidity diagnosis at the start of renal replacement therapy.
CO-MORBIDITY DIABETES (RENAL CARE) *
DIAGNOSIS DATE (DIABETES)
DIABETES TYPE (RENAL CARE)
CO-MORBIDITY MALIGNANCY (RENAL CARE) *
CO-MORBIDITY ANGINA (RENAL CARE) *
CO-MORBIDITY LIVER DISEASE (RENAL CARE) *
CO-MORBIDITY CEREBROVASCULAR DISEASE (RENAL CARE) *
CO-MORBIDITY CHRONIC OBSTRUCTIVE PULMONARY DISEASE (RENAL CARE) *
CO-MORBIDITY CLAUDICATION (RENAL CARE) *
CO-MORBIDITY ISCHAEMIC OR NEUROPATHIC ULCERS (RENAL CARE) *
CO-MORBIDITY MYOCARDIAL INFARCTION MORE THAN 3 MONTHS AGO (RENAL CARE) *
CO-MORBIDITY MYOCARDIAL INFARCTION WITHIN LAST 3 MONTHS (RENAL CARE) *
CO-MORBIDITY FRACTURE (RENAL CARE) *
Patient Procedures.
To carry the details of the procedures for the patient. This group lists certain procedures where an indicator as to whether the procedure has been carried out on the patient needs to be collected.
PROCEDURE NON-CORONARY ANGIOPLASTY (RENAL CARE) *
PROCEDURE CORONARY ANGIOPLASTY OR CORONARY ARTERY BYPASS GRAFT (RENAL CARE) *
PROCEDURE PARENTERAL IRON (RENAL CARE) *
PROCEDURE PERIPHERAL VASCULAR DISEASE AMPUTATION (RENAL CARE) *
PROCEDURE AMPUTATION (RENAL CARE) *
Patient Observations.
To carry the general observations of the patient.
PERSON HEIGHT IN CENTIMETRES
OBSERVATION DATE (HEIGHT) 
HEIGHT IN CENTIMETRES FIRST VISIT
PERSON WEIGHT (RENAL CARE)
OBSERVATION DATE (WEIGHT)
DIASTOLIC BLOOD PRESSURE
SYSTOLIC BLOOD PRESSURE
OBSERVATION DATE (BLOOD PRESSURE) 
BLOOD GROUP ABO CLASSIFICATION
BLOOD RHESUS CLASSIFICATION
SMOKING STATUS (RENAL CARE) *
OBSERVATION DATE (SMOKING STATUS)
NUMBER OF YEARS SMOKED
CIGARETTES PER DAY
OBSERVATION DATE (STOPPED SMOKING)
ESTIMATED GLOMERULAR FILTRATION RATE
OBSERVATION DATE (ESTIMATED GLOMERULAR FILTRATION RATE)
Calculated Creatinine Clearance details.
To carry the details of creatinine clearance for the patient.
CALCULATED CREATININE CLEARANCE TYPE 
CALCULATED CREATININE CLEARANCE
OBSERVATION DATE (CALCULATED CREATININE CLEARANCE)
MEASURED 24HR CREATININE CLEARANCE
OBSERVATION DATE (MEASURED 24 HOUR CREATININE CLEARANCE)
Measured Glomerular Filtration Rate details.
To carry the details of the Measured Glomerular Filtration Rate for the patient.
MEASURED GLOMERULAR FILTRATION RATE TYPE CODE
MEASURED GLOMERULAR FILTRATION RATE CORRECTED *
MEASURED GLOMERULAR FILTRATION RATE
OBSERVATION DATE (MEASURED GLOMERULAR FILTRATION RATE)
Blood test observations.
To carry the details of blood tests carried out for the patient.
HEPATITIS B ANTIBODY STATUS (RENAL CARE)
OBSERVATION DATE (HEPATITIS B ANTIBODY)
HEPATITIS B ANTIGEN STATUS (RENAL CARE)
OBSERVATION DATE (HEPATITIS B ANTIGEN)
HEPATITIS C ANTIBODY STATUS (RENAL CARE)
OBSERVATION DATE (HEPATITIS C ANTIBODY)
HUMAN IMMUNODEFICIENCY VIRUS STATUS (RENAL CARE)
OBSERVATION DATE (HUMAN IMMUNODEFICIENCY VIRUS)
SERUM CREATININE CONCENTRATION
OBSERVATION DATE (SERUM CREATININE CONCENTRATION)
SERUM CREATININE CONCENTRATION (PRIOR END STAGE RENAL FAILURE)
SERUM ALBUMIN CONCENTRATION
OBSERVATION DATE (SERUM ALBUMIN CONCENTRATION)
SERUM ALUMINIUM CONCENTRATION
OBSERVATION DATE (SERUM ALUMINIUM CONCENTRATION)
SERUM BICARBONATE CONCENTRATION
OBSERVATION DATE (SERUM BICARBONATE CONCENTRATION) 
BLOOD UREA CONCENTRATION
OBSERVATION DATE (BLOOD UREA CONCENTRATION)
SERUM CALCIUM CONCENTRATION
SERUM CALCIUM CONCENTRATION CORRECTION CODE
OBSERVATION DATE (SERUM CALCIUM CONCENTRATION)
SERUM C-REACTIVE PROTEIN CONCENTRATION
OBSERVATION DATE (SERUM C-REACTIVE PROTEIN CONCENTRATION)
HAEMOGLOBIN CONCENTRATION
OBSERVATION DATE (HAEMOGLOBIN CONCENTRATION)
HbA1c CONCENTRATION (DCCT) or
HbA1c CONCENTRATION (IFCC)
OBSERVATION DATE (HbA1c LEVEL)
HbA1c ASSAY MEASUREMENT METHOD
HYPOCHROMIC RED CELLS PERCENTAGE
OBSERVATION DATE (HYPOCHROMIC RED CELLS PERCENTAGE)
SERUM B12 CONCENTRATION
OBSERVATION DATE (SERUM B12 CONCENTRATION)
TRANSFERRIN SATURATION
OBSERVATION DATE (TRANSFERRIN SATURATION)
RED CELL FOLATE CONCENTRATION
OBSERVATION DATE (RED CELL FOLATE CONCENTRATION)
SERUM FERRITIN CONCENTRATION
OBSERVATION DATE (SERUM FERRITIN CONCENTRATION)
CHOLESTEROL HIGH DENSITY LIPOPROTEIN CONCENTRATION
OBSERVATION DATE (HIGH DENSITY LIPOPROTEIN CHOLESTEROL CONCENTRATION)
CHOLESTEROL LOW DENSITY LIPOPROTEIN CONCENTRATION
OBSERVATION DATE (LOW DENSITY LIPOPROTEIN CHOLESTEROL CONCENTRATION)
CHOLESTEROL TOTAL CONCENTRATION
OBSERVATION DATE (TOTAL CHOLESTEROL CONCENTRATION)
SERUM INTACT PARATHYROID HORMOME CONCENTRATION
OBSERVATION DATE (SERUM INTACT PARATHYROID HORMONE CONCENTRATION)
VITAMIN D CONCENTRATION
OBSERVATION DATE (VITAMIN D CONCENTRATION)
ALKALINE PHOSPHATASE CONCENTRATION
OBSERVATION DATE (ALKALINE PHOSPHATASE CONCENTRATION)
PHOSPHATE CONCENTRATION
OBSERVATION DATE (PHOSPHATE CONCENTRATION)
SODIUM CONCENTRATION
OBSERVATION DATE (SODIUM CONCENTRATION)
TRIGLYCERIDES CONCENTRATION
OBSERVATION DATE (TRIGLYCERIDES CONCENTRATION)
SERUM POTASSIUM CONCENTRATION
OBSERVATION DATE (SERUM POTASSIUM CONCENTRATION)
URIC ACID CONCENTRATION
OBSERVATION DATE (URIC ACID CONCENTRATION)
UREA REDUCTION RATIO
SERUM MAGNESIUM CONCENTRATION
OBSERVATION DATE (SERUM MAGNESIUM CONCENTRATION)
GAMMA GLUTAMYL TRANSFERASE CONCENTRATION
OBSERVATION DATE (GAMMA GLUTAMYL TRANSFERASE CONCENTRATION)
BILIRUBIN CONCENTRATION
OBSERVATION DATE (BILIRUBIN CONCENTRATION)
ALANINE AMINOTRANSFERASE CONCENTRATION
OBSERVATION DATE (ALANINE AMINOTRANSFERASE CONCENTRATION)
ASPARTATE AMINOTRANSFERASE CONCENTRATION
OBSERVATION DATE (ASPARTATE AMINOTRANSFERASE CONCENTRATION)
LACTATE DEHYDROGENASE CONCENTRATION
OBSERVATION DATE (LACTATE DEHYDROGENASE CONCENTRATION)

top


NATIONAL RENAL DATA SET - TRANSPLANT

Change to Data Set: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview

Items that are marked * were not approved by the Information Standards Board for Health and Social Care as they are under review and will be defined at a later version.

There are two distinct areas of this section, data items to be captured for the recipient of a kidney transplant and the data items to be captured for the donor of that transplant.

Data Set Data Elements
General Transplant details.
To carry the general transplant details for the patient.
SITE CODE (OF UK TRANSPLANT CENTRE) 
UK TRANSPLANT NUMBER 
REFERRAL DATE (TRANSPLANT CONSIDERATION) 
ASSESSMENT DATE (FOR TRANSPLANT SUITABILITY) 
TRANSPLANT WAITING LIST STATUS CODE (RENAL) 
TRANSPLANT WAITING LIST STATUS (CHANGED DATE) 
TRANSPLANT TYPE RECIPIENT REQUIRED CODE 
PROCEDURE DATE (TRANSPLANT) 
SITE CODE (OF SURGERY) 
THEATRE CASE START TIME 
DONOR KIDNEY REMOVED FROM ICE DATE AND TIME 
DONOR KIDNEY PERFUSED WITH RECIPIENT BLOOD DATE AND TIME 
COLD ISCHAEMIC TIME 
Recipient details.
To carry the general details of the donor recipient.
One occurrence of this group is allowed.
LOCAL PATIENT IDENTIFIER (UK TRANSPLANT RECIPIENT NUMBER) 
PANCREAS TRANSPLANT LIST ORGAN OR ISLET CODE 
KIDNEY ONLY TRANSPLANT LIST INDICATOR *
REGISTERED FOR OTHER TRANSPLANT INDICATOR *
REGISTERED FOR OTHER TRANSPLANT TYPE *
PREVIOUS GRAFTS RECEIVED (PANCREAS OR KIDNEY) *
SITE CODE (OF RENAL UNIT) 
SITE CODE (OF RECIPIENT FOLLOW-UP CENTRE) 
RENAL TRANSPLANT ORGAN OR TISSUE TRANSPLANTED CODE 
DIAGNOSIS RENAL PRIMARY OR RECURRENT DISEASE (RENAL RECIPIENT) *
DIAGNOSIS DATE (PRIMARY OR RECURRENT RENAL DISEASE) *
DIAGNOSIS MALIGNANCY WITHIN 3 MONTHS POST TRANSPLANT (RENAL RECIPIENT) *
DIAGNOSIS MALIGNANCY WITHIN 12 MONTHS POST TRANSPLANT (RENAL RECIPIENT) *
DIAGNOSIS DIABETES ONSET SINCE TRANSPLANT (RENAL RECIPIENT) *
DIAGNOSIS PREGNANCY (RENAL RECIPIENT) *
RENAL TRANSPLANT FAILED CAUSE CODE
DIAGNOSIS DATE (RENAL TRANSPLANT FAILED)
DIAGNOSIS ACUTE REJECTION (RENAL RECIPIENT) *
DIAGNOSIS DATE (ACUTE REJECTION INDICATOR)
PROCEDURE INDICATOR (BLOOD TRANSFUSION) *
HYPERTENSION TREATMENT EPISODE (CURRENT) *
TRANSPLANT PATIENT LAST CONTACT DATE 
Recipient procedure details.
To carry the details of the procedures carried out for the recipient.
KIDNEY TRANSPLANTED CODE
PROCEDURE (IMMUNOSUPPRESSIVE OTHER THAN FOR TRANSPLANT) *
PROCEDURE (GRAFT NEPHRECTOMY) *
PROCEDURE DATE (GRAFT NEPHRECTOMY)
Recipient observation details.
To carry the details of the observations carried out for the recipient.
OBSERVATION DATE (GRAFT CLINICAL ASSESSMENT)
BLOOD TEST (CYTOMEGALOVIRUS RECIPIENT)
OBSERVATION DATE (CYTOMEGALOVIRUS)
BLOOD TEST (HEPATITIS B ANTIGEN RECIPIENT)
OBSERVATION DATE (HEPATITIS B ANTIGEN)
BLOOD TEST (CORE ANTIBODY RECIPIENT)
OBSERVATION DATE (CORE ANTIBODY) 
BLOOD TEST (HEPATITIS B E ANTIBODY RECIPIENT)
OBSERVATION DATE (HEPATITIS B E ANTIBODY)
BLOOD TEST (EPSTEIN-BARR VIRUS RECIPIENT)
OBSERVATION DATE (EPSTEIN-BARR VIRUS)
BLOOD TEST (VARICELLA-ZOSTER VIRUS RECIPIENT)
OBSERVATION DATE (VARICELLA-ZOSTER)
DIAGNOSIS CYTOMEGALOVIRUS CODE (RENAL RECIPIENT)
OBSERVATION DATE (CYTOMEGALOVIRUS TYPE)
CYTOMEGALOVIRUS POLYMERASE CHAIN REACTION VIRAL LOAD
OBSERVATION DATE (CYTOMEGALOVIRUS POLYMERASE CHAIN REACTION VIRAL LOAD)
DIAGNOSIS CARDIOVASCULAR COMPLICATIONS (RENAL RECIPIENT)
Recipient Tissue Typing details.
To carry the details of the tissue typing for the recipient.
OBSERVATION DATE (TISSUE TYPING RECIPIENT) 
HUMAN LEUKOCYTE ANTIGEN A BROAD SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN A SPLIT SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN A ALLELE 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN A BROAD SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN A SPLIT SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN A ALLELE 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B BROAD SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B SPLIT SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B ALLELE 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B BROAD SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B SPLIT SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B ALLELE 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN B BW4/BW6 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR BROAD SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR SPLIT SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR ALLELE 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR BROAD SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR SPLIT SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR ALLELE 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DR DR51/52/53/53N RECIPIENT
HUMAN LEUKOCYTE ANTIGEN CW BROAD SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN CW SPLIT SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN CW ALLELE 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN CW BROAD SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN CW SPLIT SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN CW ALLELE 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DQB1 BROAD SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DQB1 SPLIT SPECIFICITY 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DQB1 ALLELE 1 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DQB1 BROAD SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DQB1 SPLIT SPECIFICITY 2 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN DQB1 ALLELE 2 RECIPIENT
ALLELE DRB3 RECIPIENT
ALLELE DRB4 RECIPIENT
ALLELE DRB5 RECIPIENT
HUMAN LEUKOCYTE ANTIGEN-A MISMATCH INDICATOR 
HUMAN LEUKOCYTE ANTIGEN-B MISMATCH INDICATOR 
HUMAN LEUKOCYTE ANTIGEN-DR MISMATCH INDICATOR 
HUMAN LEUKOCYTE ANTIGEN UNACCEPTABLE SPECIFICITY (ANTIBODY DEFINED) 
HUMAN LEUKOCYTE ANTIGEN UNACCEPTABLE SPECIFICITY (OTHER) 
Recipient immunosuppression and anti rejection details.
To carry the details of the recipient's immunosuppression and anti-rejection (post transplant) observations.
CYCLOSPORINE A 12 HOUR TROUGH LEVEL (RECIPIENT)
OBSERVATION DATE (CYCLOSPORINE A 12 HOUR TROUGH LEVEL)
CYCLOSPORINE A 2 HOUR TROUGH LEVEL C2 (RECIPIENT)
OBSERVATION DATE (CYCLOSPORINE A 2 HOUR LEVEL C2) 
TACROLIMUS 12 HOUR TROUGH LEVEL (RECIPIENT)
OBSERVATION DATE (TACROLIMUS 12 HOUR TROUGH LEVEL)
SIROLIMUS TROUGH LEVEL (RECIPIENT)
OBSERVATION DATE (SIROLIMUS TROUGH LEVEL)
MYCOPHENOLIC ACID TROUGH LEVEL (RECIPIENT)
OBSERVATION DATE (MYCOPHENOLIC ACID TROUGH LEVEL)
PROTEIN CREATININE RATIO
OBSERVATION DATE (PROTEIN CREATININE RATIO)
Donor general details.
To carry the general details of the donor.
LOCAL PATIENT IDENTIFIER (UK TRANSPLANT DONOR NUMBER) 
NHS NUMBER (TRANSPLANT DONOR) 
ORGAN DONOR REGISTER CHECKED INDICATOR *
ORGAN OR TISSUE DONOR NOTIFIED TO UK TRANSPLANT DATE AND TIME 
PERSON AGE IN YEARS AND MONTHS (DONOR) 
PERSON GENDER CODE CURRENT (DONOR) 
ETHNIC CATEGORY (DONOR) 
DONOR BLOOD GROUP ABO CLASSIFICATION
DONOR BLOOD RHESUS CLASSIFICATION
START DATE AND TIME (HOSPITAL PROVIDER SPELL)
SITE CODE (OF DONOR HOSPITAL) 
SITE CODE (OF UK TRANSPLANT ORGAN RETRIEVAL CENTRE) 
CARE PROFESSIONAL JOB ROLE (GRADE OF RETRIEVING SURGEON) 
DIAGNOSIS NORMOTENSIVE (RENAL DONOR) *
DIAGNOSIS DATE (NORMOTENSIVE)
DIAGNOSIS HYPERTENSION (RENAL DONOR) *
DIAGNOSIS DATE (HYPERTENSION)
NUMBER OF DIAGNOSES (HYPOTENSION) 
DIAGNOSIS HYPOTENSION (RENAL DONOR) *
DIAGNOSIS DATE (HYPOTENSION)
NUMBER OF DIAGNOSES (HYPOTENSION) 
DIAGNOSIS CARDIOVASCULAR DISEASE (RENAL DONOR) *
DIAGNOSIS DATE (CARDIOVASCULAR DISEASE)
DIAGNOSIS TUMOUR (RENAL DONOR) *
DIAGNOSIS DATE (TUMOUR)
DIAGNOSIS ALCOHOL ABUSE (RENAL DONOR) * 
DIAGNOSIS DRUG MISUSE (RENAL DONOR) *
DIAGNOSIS URINARY TRACT INFECTION (RENAL DONOR) *
DIAGNOSIS DATE (URINARY TRACT INFECTION)
DIAGNOSIS OTHER PAST MEDICAL HISTORY (RENAL DONOR) *
DIAGNOSIS CHEST INFECTION (RENAL DONOR) *
DIAGNOSIS DATE (CHEST INFECTION)
DIAGNOSIS URINE INFECTION (RENAL DONOR) *
DIAGNOSIS DATE (URINE INFECTION)
DIAGNOSIS ASPIRATION INFECTION (RENAL DONOR) *
DIAGNOSIS DATE (ASPIRATION INFECTION) 
ORGAN OR TISSUE DONOR CONTRAINDICATIONS CODE
DIAGNOSIS DIABETES (RENAL DONOR) *
DIAGNOSIS DATE (DIABETES)
DIAGNOSIS LIVER DISEASE (RENAL DONOR) *
DIAGNOSIS DATE (LIVER DISEASE)
Donor procedure details.
To carry the details of procedures carried out for the donor.
PROCEDURE DATE AND TIME (ORGAN OR TISSUE RETRIEVAL)
PROCEDURE DATE AND TIME (PLACED ON ICE LEFT KIDNEY)
PROCEDURE DATE AND TIME (PLACED ON ICE PANCREAS)
PROCEDURE DATE AND TIME (PLACED ON ICE RIGHT KIDNEY)
PROCEDURE DATE AND TIME (VENTILATION STARTED)
PROCEDURE DATE AND TIME (VENTILATION STOPPED)
NUMBER OF DAYS ON VENTILATION
PROCEDURE DATE AND TIME (COLD PERFUSION)
Donor observation details.
To carry the details of observations carried out for the donor.
PERSON HEIGHT IN CENTIMETRES
OBSERVATION DATE (HEIGHT) 
PERSON WEIGHT (RENAL CARE)
OBSERVATION DATE (WEIGHT)
WAIST MEASUREMENT
OBSERVATION DATE (WAIST MEASUREMENT)
BLOOD PRESSURE AVERAGED
OBSERVATION DATE AND TIME (BLOOD PRESSURE AVERAGED)
BLOOD PRESSURE HIGHEST
OBSERVATION DATE AND TIME (BLOOD PRESSURE HIGHEST)
NUMBER OF MINUTES (BLOOD PRESSURE HIGHEST)
BLOOD PRESSURE LOWEST
OBSERVATION DATE AND TIME (BLOOD PRESSURE LOWEST)
NUMBER OF MINUTES (BLOOD PRESSURE LOWEST)
HEART RATE
OBSERVATION DATE AND TIME (HEART RATE)
TEMPERATURE
OBSERVATION DATE AND TIME (TEMPERATURE)
SMOKING STATUS CIGARETTE SMOKER (TRANSPLANT DONOR) *
OBSERVATION DATE (SMOKING STATUS)
SMOKING STATUS CIGAR OR PIPE SMOKER (TRANSPLANT DONOR) *
OBSERVATION DATE (SMOKING STATUS)
CIGARETTES PER DAY
NUMBER OF YEARS STOPPED SMOKING
START DATE (KIDNEY PERFUSION LEFT KIDNEY)
START TIME (KIDNEY PERFUSION LEFT KIDNEY)
START DATE (KIDNEY PERFUSION RIGHT KIDNEY)
START TIME (KIDNEY PERFUSION RIGHT KIDNEY)
KIDNEY PERFUSION FLUID TYPE
KIDNEY MACHINE PERFUSED INDICATOR *
NUMBER OF MINUTES PERFUSED ON MACHINE
KIDNEY PERFUSION QUALITY INDICATOR (LEFT KIDNEY) *
KIDNEY PERFUSION QUALITY INDICATOR (RIGHT KIDNEY) *
KIDNEY DAMAGE CAPSULE STRIPPED (LEFT KIDNEY) *
KIDNEY DAMAGE CAPSULE STRIPPED (RIGHT KIDNEY) *
KIDNEY DAMAGE CAPSULE TORN (LEFT KIDNEY) *
KIDNEY DAMAGE CAPSULE TORN (RIGHT KIDNEY) *
KIDNEY DAMAGE CUT POLAR ARTERY (LEFT KIDNEY) *
KIDNEY DAMAGE CUT POLAR ARTERY (RIGHT KIDNEY) *
KIDNEY DAMAGE CUT RENAL ARTERY (LEFT KIDNEY) *
KIDNEY DAMAGE CUT RENAL ARTERY (RIGHT KIDNEY) *
KIDNEY DAMAGE RENAL VEIN (LEFT KIDNEY) *
KIDNEY DAMAGE RENAL VEIN (RIGHT KIDNEY) *
KIDNEY DAMAGE PATCH EXCLUDING (LEFT KIDNEY) *
KIDNEY DAMAGE PATCH EXCLUDING (RIGHT KIDNEY) *
KIDNEY DAMAGE PATCH REMOVED (LEFT RENAL ARTERY) *
KIDNEY DAMAGE PATCH REMOVED (RIGHT RENAL ARTERY) *
KIDNEY DAMAGE SMALL HAEMATOMAS (LEFT KIDNEY) *
KIDNEY DAMAGE SMALL HAEMATOMAS (RIGHT KIDNEY) *
KIDNEY DAMAGE URETER STRIPPED (LEFT KIDNEY) *
KIDNEY DAMAGE URETER STRIPPED (RIGHT KIDNEY) *
KIDNEY DAMAGE OTHER DAMAGE TO KIDNEY (LEFT KIDNEY) *
KIDNEY DAMAGE OTHER DAMAGE TO KIDNEY (RIGHT KIDNEY) *
OBSERVATION DATE (FULL BLOOD COUNT TEST)
WHITE BLOOD CELL COUNT
PLATELETS COUNT
OBSERVATION DATE (BLOOD GASES TEST)
FRACTION OF INSPIRED OXYGEN PERCENTAGE
POSITIVE END-EXPIRATORY PRESSURE
SATURATION PERCENTAGE
PH LEVEL
PARTIAL PRESSURE CARBON DIOXIDE
PARTIAL PRESSURE OXYGEN
BICARBONATE CONCENTRATION
BASE EXCESS CONCENTRATION
IMAGING OR RADIODIAGNOSTIC X-RAY (CHEST)
OBSERVATION DATE (CHEST X-RAY)
PHYSIOLOGICAL MEASUREMENT (ELECTROCARDIOGRAM)
OBSERVATION DATE (ELECTROCARDIOGRAM) 
BLOOD TEST (HEPATITIS B ANTIGEN DONOR PRE-TRANSFUSION)
BLOOD TEST (HEPATITIS B ANTIGEN DONOR POST TRANSFUSION)
BLOOD TEST (CORE ANTIBODY PRE-TRANSFUSION)
BLOOD TEST (CORE ANTIBODY POST TRANSFUSION)
BLOOD TEST (HEPATITIS C VIRUS DONOR PRE-TRANSFUSION)
BLOOD TEST (HEPATITIS C VIRUS DONOR POST TRANSFUSION)
BLOOD TEST (HUMAN IMMUNODEFICIENCY VIRUS DONOR PRE-TRANSFUSION)
BLOOD TEST (HUMAN IMMUNODEFICIENCY VIRUS DONOR POST TRANSFUSION)
BLOOD TEST (CYTOMEGALOVIRUS PRE-TRANSFUSION)
BLOOD TEST (CYTOMEGALOVIRUS POST TRANSFUSION)
BLOOD TEST (CYTOMEGALOVIRUS DONOR)
BLOOD TEST (EPSTEIN-BARR VIRUS PRE-TRANSFUSION)
BLOOD TEST (EPSTEIN-BARR VIRUS POST TRANSFUSION)
BLOOD TEST (HUMAN T-CELL LYMPHOTROPIC VIRUS 1 PRE-TRANSFUSION)
BLOOD TEST (HUMAN T-CELL LYMPHOTROPIC VIRUS 1 POST TRANSFUSION)
BLOOD TEST (HUMAN T-CELL LYMPHOTROPIC VIRUS 2 PRE-TRANSFUSION)
BLOOD TEST (HUMAN T-CELL LYMPHOTROPIC VIRUS 2 POST TRANSFUSION)
BLOOD TEST (TOXOPLASMOSIS PRE-TRANSFUSION)
BLOOD TEST (TOXOPLASMOSIS POST TRANSFUSION)
BLOOD TEST (TOXOPLASMOSIS DONOR)
BLOOD TEST (SYPHILIS PRE-TRANSFUSION)
BLOOD TEST (SYPHILIS POST TRANSFUSION)
HAEMOGLOBIN CONCENTRATION
HAEMOGLOBIN CONCENTRATION MEASURED INDICATOR *
OBSERVATION DATE (HAEMOGLOBIN CONCENTRATION)
SERUM CREATININE CONCENTRATION
OBSERVATION DATE (SERUM CREATININE CONCENTRATION)
Donor tissue typing details.
To carry the details of the tissue typing for the donor.
OBSERVATION DATE (TISSUE TYPING DONOR) 
HUMAN LEUKOCYTE ANTIGEN A BROAD SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN A SPLIT SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN A ALLELE 1 DONOR
HUMAN LEUKOCYTE ANTIGEN A BROAD SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN A SPLIT SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN A ALLELE 2 DONOR
HUMAN LEUKOCYTE ANTIGEN B BROAD SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN B SPLIT SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN B ALLELE 1 DONOR
HUMAN LEUKOCYTE ANTIGEN B BROAD SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN B SPLIT SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN B ALLELE 2 DONOR
HUMAN LEUKOCYTE ANTIGEN B BW4/BW6 DONOR
HUMAN LEUKOCYTE ANTIGEN DR BROAD SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN DR SPLIT SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN DR ALLELE 1 DONOR
HUMAN LEUKOCYTE ANTIGEN DR BROAD SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN DR SPLIT SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN DR ALLELE 2 DONOR
HUMAN LEUKOCYTE ANTIGEN DR DR51/52/53/53N DONOR
HUMAN LEUKOCYTE ANTIGEN CW BROAD SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN CW SPLIT SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN CW ALLELE 1 DONOR
HUMAN LEUKOCYTE ANTIGEN CW BROAD SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN CW SPLIT SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN CW ALLELE 2 DONOR
HUMAN LEUKOCYTE ANTIGEN DQB1 BROAD SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN DQB1 SPLIT SPECIFICITY 1 DONOR
HUMAN LEUKOCYTE ANTIGEN DQB1 ALLELE 1 DONOR
HUMAN LEUKOCYTE ANTIGEN DQB1 BROAD SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN DQB1 SPLIT SPECIFICITY 2 DONOR
HUMAN LEUKOCYTE ANTIGEN DQB1 ALLELE 2 DONOR
ALLELE DRB3 DONOR
ALLELE DRB4 DONOR
ALLELE DRB5 DONOR
SITE CODE (OF UK TRANSPLANT TISSUE TYPING CENTRE) 
Donor urine output observation details.
To carry the details of the donor's urine output observations.
URINE OUTPUT LAST 24 HOURS
URINE OUTPUT LAST HOUR
OBSERVATION DATE AND TIME (URINE OUTPUT)
Donor Cadaveric details.
To carry the details of the cadaver donor.
ORGAN OR TISSUE DONOR TYPE (CADAVERIC DONOR) 
PERSON DEATH DATE AND TIME (CERTIFICATION) 
DEATH CAUSE CODE (TRANSPLANT DONOR) 
DEATH LOCATION TYPE (TRANSPLANT DONOR) 
DONOR TRAUMA INJURY INDICATOR (ABDOMEN) *
DONOR TRAUMA INJURY INDICATOR (CHEST) *
DONOR TRAUMA INJURY INDICATOR (HEAD) *
DIAGNOSIS CARDIAC ARREST (RENAL DONOR) *
DIAGNOSIS DATE (CARDIAC ARREST DONOR)
DIAGNOSIS TIME (CARDIAC ARREST DONOR)
NUMBER OF MINUTES (CARDIAC ARREST)
DIAGNOSIS RESPIRATORY ARREST (RENAL DONOR) *
DIAGNOSIS DATE (RESPIRATORY ARREST DONOR)
DIAGNOSIS TIME (RESPIRATORY ARREST DONOR)
NUMBER OF MINUTES (RESPIRATORY ARREST)
PROCEDURE (BLOOD TRANSFUSION DONOR) *
BLOOD TRANSFUSION O NEGATIVE INDICATOR (DONOR) *
BLOOD TRANSFUSION UNITS TRANSFUSED (DURING LAST 3 MONTHS)
BLOOD TRANSFUSION UNITS TRANSFUSED (DURING LAST MONTH)
BLOOD TRANSFUSION UNITS TRANSFUSED (DURING LAST WEEK)
BLOOD TEST PRE-BLOOD TRANSFUSION INDICATOR (DONOR) *
ORGAN OR TISSUE DONATION CONSENT (CORONER) *
ORGAN OR TISSUE DONATION CONSENT (TRANSPLANT) *
ORGAN OR TISSUE DONATION CONSENT (CLINICAL AUDIT) *
ORGAN OR TISSUE DONATION CONSENT (NHS ACADEMIC RESEARCH) *
ORGAN OR TISSUE DONATION CONSENT (COMMERCIAL RESEARCH) *
ORGAN OR TISSUE DONATION CONSENT (TRAINING EDUCATION) *
Further cadaveric donor details.
To carry the details of the retrieved kidneys considered untransplantable and sent for research. Only list the untransplantable kidneys (either individually or en-bloc). If this is both kidneys then the distinction between en-bloc kidneys (one row completed), and separated kidneys (two rows completed) is maintained.
ORGAN OR TISSUE UNSUITABLE ORGAN CODE (RENAL TRANSPLANT) 
ORGAN OR TISSUE UNSUITABLE FOR TRANSPLANTATION REASON CODE 
Cadaver donor procedure details.
To carry the details of the cadaveric donor procedures carried out.
PROCEDURE DATE AND TIME (ESTIMATED DONOR RETRIEVAL)
PROCEDURE (ORGAN OR TISSUE RETRIEVED LEFT KIDNEY) *
PROCEDURE (ORGAN OR TISSUE RETRIEVED RIGHT KIDNEY) *
PROCEDURE (ORGAN OR TISSUE RETRIEVED PANCREAS) *
Cadaver donor observation details.
To carry the details of the observations for the cadaver donor.
OBSERVATION DATE AND TIME (FIRST BRAINSTEM DEATH TEST) 
KIDNEY BRANCHES TIED (LEFT KIDNEY) *
KIDNEY BRANCHES TIED (RIGHT KIDNEY) *
NUMBER OF ARTERIES LEFT KIDNEY (DONOR)
NUMBER OF ARTERIES RIGHT KIDNEY (DONOR)
NUMBER OF ARTERIAL PATCHES LEFT KIDNEY (DONOR)
NUMBER OF ARTERIAL PATCHES RIGHT KIDNEY (DONOR)
NUMBER OF ARTERIES ON PATCH LEFT KIDNEY (DONOR)
NUMBER OF ARTERIES ON PATCH RIGHT KIDNEY (DONOR)
NUMBER OF VEINS LEFT KIDNEY (DONOR)
NUMBER OF VEINS RIGHT KIDNEY (DONOR)
NUMBER OF MINUTES (WARM ISCHAEMIC TIME)
CROSS MATCH MATERIAL INDICATOR (LYMPH NODE LEFT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (LYMPH NODE RIGHT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (SPLEEN LEFT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (SPLEEN RIGHT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (BLOOD LEFT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (BLOOD RIGHT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (CELLS LEFT KIDNEY) *
CROSS MATCH MATERIAL INDICATOR (CELLS RIGHT KIDNEY) *
BLOOD UREA CONCENTRATION (DONOR ON ADMISSION)
BLOOD UREA CONCENTRATION (DONOR ON RETRIEVAL)
GLUCOSE CONCENTRATION (DONOR)
POTASSIUM CONCENTRATION (DONOR ON ADMISSION)
POTASSIUM CONCENTRATION (DONOR ON RETRIEVAL)
SERUM CREATININE CONCENTRATION (DONOR ON ADMISSION)
SERUM CREATININE CONCENTRATION (DONOR ON RETRIEVAL)
SODIUM CONCENTRATION (DONOR ON ADMISSION)
SODIUM CONCENTRATION (DONOR ON RETRIEVAL)
TOTAL PROTEIN CONCENTRATION (DONOR)
SERUM ALBUMIN CONCENTRATION (DONOR)
SERUM CALCIUM CONCENTRATION (DONOR)
PHOSPHATE CONCENTRATION (DONOR)
Cadaveric non heart donor beating details.
To carry the details for the cadaver non heating beating donor.
DIAGNOSIS DATE AND TIME (CARDIAC ARREST UNCONTROLLED DONOR) 
DIAGNOSIS DATE AND TIME (CARDIAC ARREST CONTROLLED DONOR) 
DONOR CATEGORY CODE (NON-HEART BEATING) 
PROCEDURE DATE AND TIME (START RESUSCITATION UNCONTROLLED DONOR) 
PROCEDURE DATE AND TIME (CESSATION OF RESUSCITATION UNCONTROLLED DONOR) 
TREATMENT WITHDRAWN DATE AND TIME 
DIAGNOSIS DATE AND TIME (CIRCULATORY ARREST) 
PROCEDURE DATE AND TIME (VENTILATION CEASED) 
Living donor details.
To carry the details of the living donor.
LAST CONTACT DATE (LIVING DONOR) 
FOLLOW-UP INDICATOR (LIVING DONOR) *
LOST TO FOLLOW-UP INDICATOR (LIVING DONOR) * 
TRANSFERRED FOR FOLLOW-UP INDICATOR (LIVING DONOR) *
PERSON BIRTH DATE (LIVING DONOR) 
PERSON FULL NAME (HUMAN LEUKOCYTE ANTIGEN ASSESSOR) 
SITE CODE (OF DONOR FOLLOW-UP CENTRE) 
PERSON RELATIONSHIP TYPE (DONOR TO RECIPIENT) 
PERSON DEATH DATE (LIVING DONOR) 
PROCEDURE DATE (LIVING DONOR ORGAN DONATION) 
DIAGNOSIS WOUND INFECTION (LIVING DONOR) *
DIAGNOSIS DATE (WOUND INFECTION PERI OR POST OPERATIVE) 
DIAGNOSIS DEEP VEIN THROMBOSIS (LIVING DONOR) * 
DIAGNOSIS DATE (DEEP VEIN THROMBOSIS PERI OR POST OPERATIVE)
DIAGNOSIS PNEUMOTHROAX (LIVING DONOR) *
DIAGNOSIS DATE (PNEUMOTHORAX PERI OR POST OPERATIVE)
DIAGNOSIS PNEUMONIA (LIVING DONOR) *
DIAGNOSIS DATE (PNEUMONIA PERI OR POST OPERATIVE)
DIAGNOSIS PULMONARY THROMBO EMBOLISM (LIVING DONOR) *
DIAGNOSIS DATE (PULMONARY THROMBO EMBOLISM PERI OR POST OPERATIVE)
PRESCRIBED MEDICATION INDICATOR (ANTIHYPERTENSION WITHIN LAST 12 MONTHS LIVING DONOR) *
OTHER POST OR PERI OPERATIVE COMPLICATIONS INDICATOR (LIVING DONOR) *
SUBSEQUENT OPERATION INDICATOR (POST OPERATIVE LIVING DONOR) *
NUMBER OF MONTHS TO RETURN TO PREVIOUS GENERAL ACTIVITY LEVEL 
JOB ROLE (OPERATING SURGEON TYPE FOR DONATION) 
JOB ROLE (ANAESTHETIST TYPE FOR DONATION) 
JOB ROLE (MOST SENIOR SCRUBBED SURGEON FOR DONATION) 
Living donor procedure details.
To carry the procedure details for the living donor.
PROCEDURE (NEPHRECTOMY TYPE) 
PROCEDURE INDICATOR (SPLENECTOMY)  *
Living donor observation details.
To carry the observation details for the living donor.
KIDNEY RETRIEVED CODE
BLOOD TEST (HEPATITIS C VIRUS ANTIBODY DONOR)
HUMAN IMMUNODEFICIENCY VIRUS STATUS (DONOR)
BLOOD TEST (HUMAN T-CELL LYMPHOTROPIC VIRUS)
BLOOD TEST (SYPHILIS DONOR)
NUMBER OF RENAL ARTERIES (DONOR)
BLOOD PRESSURE SITTING
OBSERVATION DATE AND TIME (BLOOD PRESSURE)
URINE DIPSTICK TEST (BLOOD)
OBSERVATION DATE (URINE DIPSTICK TEST BLOOD)
URINE DIPSTICK TEST (PROTEIN)
OBSERVATION DATE (URINE DIPSTICK TEST PROTEIN)
PROTEIN CREATININE RATIO
OBSERVATION DATE (PROTEIN CREATININE RATIO)
ESTIMATED GLOMERULAR FILTRATION RATE
OBSERVATION DATE (ESTIMATED GLOMERULAR FILTRATION RATE)
CALCULATED CREATININE CLEARANCE TYPE 
CALCULATED CREATININE CLEARANCE
OBSERVATION DATE (CALCULATED CREATININE CLEARANCE)
MEASURED CREATININE CLEARANCE
OBSERVATION DATE (MEASURED CREATININE CLEARANCE) 
MEASURED GLOMERULAR FILTRATION RATE CORRECTED *
MEASURED GLOMERULAR FILTRATION RATE
OBSERVATION DATE (MEASURED GLOMERULAR FILTRATION RATE)
ISOTOPIC GLOMERULAR FILTRATION RATE (LIVING DONOR)
OBSERVATION DATE AND TIME (ISOTOPIC GLOMERULAR FILTRATION RATE)
ISOTOPIC GLOMERULAR FILTRATION RATE CORRECTED *

top


CLINICAL DATA SETS MESSAGE DOCUMENTATION MENU

Change to Supporting Information: Changed Description

top


NATIONAL RENAL DATA SET INTRODUCTION

Change to Supporting Information: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

National Renal Data Set Overview 

Introduction to the sections within the National Renal Data Set

National Renal Data Set - Demographics 
This section contains data items to capture PATIENT identifiers, demographic information and organisational data. This data can be used to link different data collections together within renal care, as part of wider analysis across co-morbidities and between primary and secondary care. The demographic data can be used to analyse outcomes across different ethnic groups, age groups and geographic locations.

National Renal Data Set - Administration
The Administration section specifies data items concerning admission, discharge, referral, listing for surgery and PATIENT transport. These provide information on workforce planning, knowledge to support audits within the renal community, intelligence on the source of referral, monitoring of the rate and timeliness of referral to renal team, comparisons with set targets and understanding PATIENT views on transport and the performance of the transport provided for PATIENTS.

National Renal Data Set - Renal Care 
This is a general nephrology section capturing a wide range of data. It includes a PATIENT’s treatment, procedures, co-morbidities, test results and observations all of which can be used for secondary analysis of outcomes. The diagnosis, procedures and observations are split into sub sections.


National Renal Data Set - Dialysis
The data items in this section apply only to PATIENTS receiving kidney Renal Dialysis. The section contains items such as PATIENT observations relevant to their Renal Dialysis treatment and adequacy, complications and procedures to construct access.

Diagnosis, procedures and observations that apply to Renal Dialysis PATIENTS regardless of the type of Renal Dialysis are specified at the beginning of the section. There are sub sections for Haemodialysis and Peritoneal Dialysis (PD) specific diagnosis, observations and procedures. The items concerning Peritoneal Dialysis relate primarily to the actual PRESCRIPTION of Peritoneal Dialysis and data such as the number of bags per week or Renal Dialysis fluid used would be captured when the PRESCRIPTION changes.

National Renal Data Set - Transplant
There are two distinct areas of this section, namely data items to be captured for the recipient of a kidney transplant and the data items to be captured for the donor of that transplant. The recipient will be the renal PATIENT to whom the rest of the data set applies, hence the transplant section should not be taken in isolation. There are data items that are relevant to the transplant recipient specified in other sections of the data set because they are relevant to all renal PATIENTS.

The donor sub section specifies data to be captured for the donor such as Tissue Typing, co-morbidity and blood test result data which can be used to monitor and analyse outcomes for the recipient with regard to the source of the transplanted kidney. For cadaveric donors the items specified would be a one off collection related to the actual transplant.

National Renal Data Set - Paediatrics 
This section specifies items applicable only to paediatric renal PATIENTS and captures data more appropriate for analysis and monitoring of this group. The majority of the data items in this section are currently captured on the British Association for Paediatric Nephrology Registry’s data entry sheets, the remainder are new items.

National Renal Data Set - Dietetics
This section contains data items to capture Nutritional Assessment and dietary requirements/advice. Data is captured by the renal dietitian as part of the management of the PATIENT’s renal care. This data applies to all renal PATIENTS and should be captured where appropriate and where needed at every assessment with a renal dietitian.

National Renal Data Set - Prescribed Items 
This section captures indicators on the PRESCRIPTION of various medications and items specific to renal care and their dosages.

For further guidance see the NHS Digital website at: National Renal Data Set.For further guidance see the UK Renal Registry or NHS Blood and Transplant.

top


NATIONAL RENAL DATA SET OVERVIEW

Change to Supporting Information: Changed Description

This data set is out of date therefore the information should not be used.
For further information, see the UK Renal Registry or NHS Blood and Transplant.

Contextual Overview

The National Renal Data Set is used to:

  • Monitor the effectiveness of the National Service Framework for Renal Services (Parts 1 & 2)
  • Inform service development and implementation in renal medicine and transplantation
  • Analysis of the information is used by Primary Care Trusts, Acute and Foundation Trusts, Strategic Health Authorities, Special Health Authorities and professional bodies covering the renal specialty.

The reference group which supported the development of the National Renal Data Set included representatives from the following bodies:

Data Extract Specification

Description

The National Renal Data Set may be voluntarily submitted by Health Care Providers of renal care, paediatric renal care and renal transplantation

The Department of Health and Social Care require NHS providers of renal medicine and renal transplant to generate a data extract to fulfil the reporting requirements of the National Renal Data SetHealth Care Providers of renal care are required to collect all data items relating to renal care, including Renal Dialysis, prescribed items, demographic and administrative items.

Health Care Providers of renal care and renal transplantation are required to collect all data as defined above for renal care with the addition of data items relating to renal transplant.

Health Care Providers of paediatric renal care and renal transplantation are required to collect all data items as defined above for renal care and renal transplantation, with the addition of specific data items relating to paediatric PATIENTS.

Time period

The extract will cover one calendar quarter.

Format

Data should be formatted in accordance with the current UK Renal Registry requirements for data collection.

Data for Transplantation should be formatted in accordance with the current NHS Blood and Transplant requirements for data collection.

Data for Paediatric PATIENTS should be formatted in accordance with the current British Association for Paediatric Nephrology (BAPN) requirements.

Transmission

Electronic files will be extracted from clinical systems for transmission to the UK Renal Registry.

top


SUPPORTING DATA SETS MESSAGE DOCUMENTATION

Change to Supporting Information: Changed Description


 


Data Set Constraints:

top


SUPPORTING DATA SETS MESSAGE DOCUMENTATION MENU

Change to Supporting Information: Changed Description



  • Data Set Constraints:
  • top


    WHAT'S NEW: OCTOBER 2018  renamed from WHAT'S NEW: SEPTEMBER 2018

    Change to Supporting Information: Changed Name, Description

    Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

    Release: September 2018

    Release: October 2018

    • CR1618 (1 October 2018) - DCB0039 GUMCAD Sexually Transmitted Infection Surveillance System Data Set
    • CR1666 (Immediate) - DDCN 1665/2018 Stop Smoking Services Quarterly Data Set

    Release: September 2018

    Release: July 2018

    • CR1639 (1 April 2018) - DCB2117 NHS Continuing Healthcare Data Set Update
    • CR1630 (4 June 2018) - DCB1567 National Joint Registry Data Set Version 7
    • CR1658 (Immediate) - DDCN 1658/2018 Young Offender Institution

    Release: May 2018

    • CR1653 (Immediate) - DDCN 1653/2018 HIV and AIDS Reporting Data Set Update
    • CR1647 (Immediate) - DDCN 1647/2018 Terminology and Classifications Update

    Release: April 2018

    • CR1636 (Immediate) - DDCN 1636/2018 Department of Health: Change of name
    • CR1638 (30 April 2018) - DCB0090 Health and Social Care Organisation Reference Data: Introducing an Application Programming Interface (API)

    Release: March 2018

    • CR1588 (1 April 2018) - DCB1521 Cancer Outcomes and Services Data Set Version 8
    • CR1589 (1 April 2018) - DCB0147 National Cancer Waiting Times Monitoring Data Set Version 2.0
    • CR1610 (1 April 2018) - DCB0011 Mental Health Services Data Set Version 3.0
    • CR1642 (Immediate) - DDCN 1642/2018 Youth Offenders Institute: Change of name
    • CR1635 (Immediate) - DDCN 1635/2018 Edubase: Change of name

    Release: January 2018

    • CR1633 (Immediate) - DDCN 1633/2017 Introduction of Strategic Data Collection Service (SDCS) and Data Services Platform (DSP)

    Release: November 2017

    • CR1623 (Immediate) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set
    • CR1628 (Immediate) - DDCN 1628/2017 Employment Status

    Release: October 2017

    • CR1619 (1 October 2017) - DCB1067 National Workforce Data Set Version 2.9
    • CR1595 (Immediate) - DCB0155 Stop Smoking Services Quarterly Data Set
    • CR1572 (Immediate) - DCB2094 Sexual Orientation
    • The October 2017 Release updates the NHS Data Model and Dictionary Help Pages and Demonstrations to reflect the new organisation structure.

    Release: September 2017

    • CR1587 (1 October 2017) - SCCI1069 Community Services Data Set (CSDS) Version 1.0

    Release: July 2017

    • CR1555 (Immediate) - SCCI1518 Sexual and Reproductive Health Activity Data Set Changes
    • CR1606 (Immediate) - SCCI0011 Mental Health Services Data Set Version 2 Corrigendum

    Release: June 2017

    • CR1607 (Immediate) - DDCN 1607/2017 Renaming of NHS Commissioning Board Commissioning Region and NHS England Region (Geography)
    • CR1604 (Immediate) - DDCN 1604/2017 Introduction of the Data Coordination Board

    Release: April 2017

    The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 October 2017:

    • CR1598 (1 October 2017) - SCCI0092-2062 Commissioning Data Set Type 011 Emergency Care

    Release: March 2017

    • CR1605 (Immediate) - DDCN 1605/2017 NHS Number Status Indicator Code
    • CR1594 (Immediate) - DDCN 1594/2017 Technology Reference Data Update Distribution (TRUD)
    • CR1564 (01 April 2017) - SCCI1521 Cancer Outcomes and Services Data Set Version 7
    • CR1563 (01 April 2017) - SCCI0011 Mental Health Services Data Set Version 2.0
    • CR1577 (01 April 2017) - SCCI0084 Introduction of OPCS-4.8

    Release: December 2016

    Release: November 2016

    Release: October 2016

    • CR1578 (Immediate) - DDCN 1578/2016 Religious or Other Belief System Affiliation Groups SNOMED CT Subset
    • CR1569 (Immediate) - DDCN 1569/2016 NHS Improvement

    Release: September 2016

    • CR1545 (Immediate) - SCCI0075 and SCCI0076 Updates to the Neonatal Critical Care and Paediatric Critical Care Minimum Data Sets

    Release: August 2016

    • CR1532 (Immediate) - SCCI0090 Health and Social Care Organisation Reference Data
    • CR1583 (Immediate) - DDCN 1583/2016 Introduction of NHS Digital
    • CR1575 (Immediate) - DDCN 1575/2016 Introduction of the National Cancer Registration and Analysis Service (NCRAS)
    • CR1570 (Immediate) - DDCN 1570/2016 Update to COVER Central Return Data Set

    Release: July 2016

    • CR1565 (Immediate) - ISB 1561 Retirement of Diabetes Summary Core Data Set ISB 1561

    Release: March 2016

    • CR1300 (1 April 2016) - SCCI01477 Updates to the National Cancer Waiting Times Monitoring Data Set and introduction of the XML Schema
    • CR1412 (1 April 2016) - SCCI0021 Introduction of the International Classification of Diseases (ICD) 10th Revision 5th Edition
    • CR1544 (1 April 2016) - SCCI1111 Radiotherapy Data Set - Change of data flow
    • CR1549 (1 April 2016) - SCCII0011 Mental Health Services Data Set Version 1.1

    Release: February 2016

    • CR1517 (1 January 2016) - SCCI1067 Workforce Data Set Version 2.8
    • CR1559 (Immediate) - DDCN 1559/2016 Lower Layer Super Output Area (Residence) and ONS Local Government Geography Code (Local Authority District)

    Release: December 2015

    • CR1514 (1 January 2016) - SCCI0011 Mental Health Services Data Set
    • CR1515 (1 January 2016) - SCCI0011 Retirement of Mental Health Standards
    • CR1560 (Immediate) - DDCN 1560/2015 Retirement of Data Management and Integration Centre

    Release: November 2015

    • CR1558 (Immediate) - DDCN 1558/2015 Children and Young People’s Health Services Data Set and Community Information Data Set Inconsistencies
    • CR1554 (1 October 2015) - SCCI2026 Corrigendum to CR1494 Female Genital Mutilation Data Set

    Release: October 2015

    • CR1534 (Immediate) - DDCN 1534/2015 Retirement of Hospital Episode Statistics Cross Reference Tables

    Release: September 2015

    • CR1521 (Immediate) - SCCI1580 Palliative Care Co-ordination: Core content (Formerly End of Life Care)
    • CR1522 (Immediate) - DDCN 1522/2015 Update General Dental Council Registration Number
    • CR1530 (Immediate) - ISB 0158 Retirement of Ambulance Services (KA34) Central Return Data Set
    • CR1528 (Immediate) - ISB 1568 Retirement of KO41 (A) Hospital and Community Health Service Complaints and KO41 (B) General Practice (including Dental) Complaints Central Return Forms
    • CR1551 (Immediate) - ISB 0133 Retirement of HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set and HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set

    Release: August 2015

    • CR1374 (1 September 2015) - SCCI1510 Community Information Data Set Update
    • CR1356 (1 September 2015) - SCCI1069 Children and Young People’s Health Services Data Set Update and XML Schema
    • CR1529 (Immediate) - DDCN 1529/2015 Change to the Mechanism for XML Schema Publication and Download
    • CR1543 (Immediate) - DDCN 1543/2015 Treatment Function Code: 840 Audiology

    Release: July 2015

    • CR1475 (Immediate) - SCCI1605 Accessible Information

    Release: June 2015

    • CR1518 (Immediate) - ISB 092 CDS 6-1 Retirement
    • CR1525 (Immediate) - DDCN 1525/2015 Burden Advice and Assessment Service (BAAS)
    • CR1524 (Immediate) - DDCN 1524/2015 Updating of Activity Location Type and Source of Admission Attributes
    • CR1505 (Immediate) - DDCN 1505/2015 Death Cause Information

    Release: May 2015

    • CR1507 (Immediate) - DDCN 1507/2015 To add SUS CDS business rule H4 text

    Release: April 2015

    • CR 1494 and CR 1506 (1 April 2015) - SCCI2026 Amd 12/2014 Female Genital Mutilation Data Set and Retirement of Female Genital Mutilation Prevalence Data Set
    • CR1513 (27 April 2015) - DDCN 1513/2015 Introduction of NHS England Region (Geography)
    • CR1509 (1 April 2015) - ISB 1513 Maternity Services Data Set

    • CR1509 is a corrigendum to CR1355 (1 November 2014) - ISB 1513 Amd 45/2012 Maternity Services Data Set Update and XML Schema published in the October 2014 release

    Release: March 2015

    • CR1492 (1 April 2015) - SCCI1521 Amd 17/2014 Updates to the Cancer Outcomes and Services Data Set and XML Schema

    Release: February 2015

    • CR1486 (27 February 2015) - ISB 0090 Amd 9/2014 Organisation Data Service – Health and Justice Organisation Identifiers

    Due to a delay in the Organisation Data Service (ODS) February release, the implementation date is now 6 March 2015.

    Release: January 2015

    Release: December 2014

    • CR1396 (31 October 2014) - ISB 1567 Amd 15/2014 National Joint Registry Data Set Version 6

      The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 October 2015:

    • CR1487 (1 October 2015) - ISB 0089 Amd 8/2014 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set

    Release: November 2014

    • CR1420 (Immediate) - ISB 0139 Amd 29/2013 Genitourinary Medicine Clinic Activity Data Set (GUMCAD) Update
    • CR1421 (Immediate) - ISB 1518 Amd 30/2013 Sexual and Reproductive Health Activity Data Set (SRHAD) Update
    • CR1422 (Immediate) - ISB 1518 Amd 30/2013 Retirement of Central Return Form KT31 Cross Sector Services

    Release: October 2014

    Release: September 2014

    • CR1484 (Immediate) - DDCN 1484/2014 Female Genital Mutilation SNOMED CT Subsets

    The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 31 July 2015:

    • CR1344 (31 July 2015) - ISB 1594 Amd 31/2012 Information Sharing to Tackle Violence Minimum Data Set

    Release: August 2014

    • CR1360 (1 September 2014) - ISB 0011 Amd 5/2014 Mental Health and Learning Disabilities Data Set

    Release: July 2014

    • CR1351 (1 July 2014) - ISB 1520 Amd 02/2013 Improving Access to Psychological Therapies Data Set Version 1.5
    • CR1482 (Immediate) - DDCN 1482/2014 Source of Referral for Mental Health
    • CR1480 (Immediate) - DDCN 1480/2014 Mental Health Care Cluster 9
    • CR1477 (Immediate) - DDCN 1477/2014 Payment by Results

    • Note: CR1383 (31 December 2014) - ISB 1555 Amd 10/2012 Personal Demographics Service Birth Notification Data Sets

    At the Standardisation Committee for Care Information meeting on 28th May 2014, an amendment to the implementation date of the ISB information standard was approved. The implementation date is now 31 December 2014.

    • The July 2014 Release updates the NHS Data Model and Dictionary Help Pages to reflect the new organisation structure.

    Release: June 2014

    • CR1465 (Immediate) - DDCN 1465/2014 Primary Care Trusts and NHS Trusts
    • CR1461 (Immediate) - DDCN 1461/2014 New Standardisation Committee for Care Information (SCCI) Process
    • CR1383 (30 June 2014) - ISB 1555 Amd 10/2012 Personal Demographics Service Birth Notification Data Sets

    Release: May 2014

    Release: April 2014

    Release: March 2014

    • CR1388 (1 April 2014) - ISB 1521 Amd 23/2013 Updates to the Cancer Outcomes and Services Data Set and XML Schema
    • CR1370 (1 April 2014) - ISB 1533 Amd 24/2013 Updates to the Systemic Anti-Cancer Therapy Data Set and XML Schema
    • CR1322 (1 April 2014) - ISB 0111 Amd 26/2012 Changes to the Radiotherapy Data Set
    • CR1387 (1 April 2014) - ISB 0084 Amd 10/2013 Introduction of OPCS-4.7
    • CR1376 (1 April 2014) - ISB 1607 Amd 26/2013 Emergency Care Weekly Situation Report Data Set
    • CR1433 (Immediate) - DDCN 1433/2014 Data Services for Commissioners
    • CR1467 (1 April 2014) - DDCN 1467/2014 Retirement of Standards
    • CR1464 (1 April 2014) - DDCN 1464/2014 Retirement of Standards - Domains and Diagrams
    • CR1458 (1 April 2014) - DDCN 1458/2014 Retirement of Standards - DSCNs - 11/97/P05, 12/97/P06, 15/97/P09, 18/97/P12, 22/96/P19, 32/96/P27, 49/97/P35, 62/95/P51, 07/2007, 08/2009, 17/92, 20/2001, 22/2006 and 38/2002
    • CR1444 (1 April 2014) - DDCN 1444/2014 Retirement of Standards
    • CR1436 (1 April 2014) - DDCN 1436/2014 Retirement of Standards
    • CR1435 (1 April 2014) - DDCN 1435/2014 Retirement of Standards - DSCNs 22/95/P21, 20/91, 21/93, 40/95/P34, 09/94/P04, 93/95/P76, 23/94/A04, 8/92 and 17/93
    • CR1432 (1 April 2014) - DDCN 1432/2014 Retirement of Standards - DSCN 3/92, DSCN 12/96/P11, DSCN 50/94/P36, DSCN 66/96/W09 and DSCN 16/93
    • CR1429 (1 April 2014) - DDCN 1429/2014 Retirement of Standards - DSCN 07/96/P06
    • CR1425 (1 April 2014) - DDCN 1425/2014 Retirement of Standards
    • CR1423 (1 April 2014) - DDCN 1423/2014 Retirement of Standards - DSCNs 37/98/A09, 14/97/P08, 12/2002, 37/2003, 14/2004 and 27/2001
    • CR1419 (1 April 2014) - DDCN 1419/2014 Retirement of Standards - DSCNs 39/98/A11, 09/99/P06, 11/99/P07, 13/2003, 38/2001, 22/2001, 19/98/A02, 40/96/P34, 29/94/P19, 49/94/P35, 34/95/P29, 53/96/P44 and 96/95/P79
    • CR1418 (1 April 2014) - DDCN 1418/2014 Retirement of Standards
    • CR1417 (1 April 2014) - DDCN 1417/2014 Retirement of Standards - DSCNs 13/95/P12, 44/2001, 29/2004, 18/98/W02 and 24/98/F01
    • CR1416 (1 April 2014) - DDCN 1416/2014 Retirement of Standards - KC64 - DSCNs 05/98/P05 and 26/95/W02
    • CR1414 (1 April 2014) - DDCN 1414/2014 Retirement of Standards - DSCNs 03/99/P03, 10/2002, 12/99/A04, 20/98/A03, 30/98/P21, 35/99/P25, 37/97/P24 and 43/97/P29
    • CR1413 (1 April 2014) - DDCN 1413/2014 Retirement of Standards - DSCNs 13/97/P07, 15/96/P14, 17/2001, 20/2004, 21/2001, 21/2003, 28/98/P20, 33/2003 and 43/2002
    • CR1409 (1 April 2014) - DDCN 1409/2014 Retirement of Standards - DSCN's 46/97/P32, 01/2004, 04/2004, 11/2005, 27/2002, 31/2002, 53/2002 and 54/2002

    Release: February 2014

    • CR1460 (Immediate) - DDCN 1460/2014 NHS Dental Services Update
    • CR1459 (Immediate) - DDCN 1459/2014 General Medical Practitioner (Specified), Doctor Index Number and General Medical Practitioner PPD Code Update
    • CR1446 (Immediate) - DDCN 1446/2014 Health and Social Care Information Centre Update
    • CR1404 (Immediate) - DDCN 1404/2014 Retirement of e-Gif definitions
    • CR1395 (28 February 2014) - ISB 0090 Amd 17/2013 Organisation Data Service – NHS Postcode Directory

    Release: January 2014

    • CR1386 (31 January 2014) - ISB 0090 Amd 9/2013 Special Health Authority (SpHA) Code Structure Change
    • CR1443 (Immediate) - DDCN 1443/2014 Change of name of the National Institute for Health and Clinical Excellence
    • CR1441 (Immediate) - DDCN 1441/2014 Retirement of Review of Central Returns (ROCR) - Central Return Form KH03A
    • CR1440 (Immediate) - DDCN 1440/2014 Retirement of Review of Central Returns (ROCR) - Genitourinary Medicine Access Monthly Monitoring Data Set
    • CR1439 (Immediate) - DDCN 1439/2013 Retirement of Review of Central Returns (ROCR) Returns
    • CR1405 (Immediate) - DDCN 1405/2013 Overseas Visitors
    • CR1393 (Immediate) - DDCN 1393/2013 Amendment to Inter-Provider Transfer Administrative Minimum Data Set Overview
    • CR1392 (Immediate) - DDCN 1392/2013 Review of Central Returns (ROCR) Discontinuations - Referral to Treatment Performance Sharing Data Set
    • CR1391 (Immediate) - DDCN 1391/2013 Review of Central Returns (ROCR) Discontinuations - Referral to Treatment (RTT) Summary Patient Tracking List Data Set

    The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 June 2014:

    Release: November 2013

    • CR1424 (Immediate) - DDCN 1424/2013 Application Identifier (GS1)
    • CR1367 (29 November 2013) - ISB 0090 Amd 5/2013 Organisation Data Service - Introduction of New Sub Type Identifier for Private Dental Practices
    • CR1359 (29 November 2013) - ISB 0090 Amd 47/2012 Organisation Data Service - Identification Codes for Local Authorities
    • CR1407 (Immediate) - DDCN 1407/2013 Clinical Investigations
    • CR1415 (Immediate) - DDCN 1415/2013 Area Teams
    • CR1411 (Immediate) - DDCN 1411/2013 Update to Supporting Information: SNOMED CT®

    Release: September 2013

    • CR1348 (1 October 2013) - ISB 1597 Amd 35/2012 Breast Screening Programmes Data Set (KC63 and KC62)
    • CR1403 (Immediate) - DDCN 1403/2013 Religious or Other Belief System Affiliation
    • CR1384 (Immediate) - DDCN 1384/2013 Health and Social Care Information Centre Rebranding of XML Schemas
    • CR1397 (Immediate) - DDCN 1397/2013 Retired Main Specialty Codes

    Release: July 2013

    • CR1377 (Immediate) - ISB 0105 Retirement of Accident and Emergency Quarterly Monitoring Data Set (QMAE)

    Release: May 2013

    Release: April 2013

    • CR1372 (Immediate) - DDCN 1372/2013 Organisation Update: April 2013
    • CR1369 (Immediate) - DDCN 1369/2013 Organisation Codes and Organisation Types
    • CR1347 (1 April 2013) - ISB 1521 Amd 40/2012 Updates to the Cancer Outcomes and Services Data Set and XML Schema

    Release: March 2013

    Release: February 2013

    • CR1336 (Immediate) - DDCN 1336/2013 XML Schema Constraint Pages
    • CR1362 (Immediate) - DDCN 1362/2013 Update to Organisations in the NHS Data Model and Dictionary
    • CR1246 (Immediate) - DDCN 1246/2013 Guidance for Merging Organisations
    • CR1345 (Immediate) - DDCN 1345/2013 e-Government Interoperability Framework (e-GIF) and Government Data Standards Catalogue
    • CR1354 (Immediate) - DDCN 1354/2013 Treatment Function Code - Well Babies

    Release: December 2012

    • CR1155 (Immediate) - ISB 1567 Amd 12/2011 National Joint Registry Data Set Version 5
    • CR1324 (1 December 2012) - ISB 1067 Amd 23/2012 Workforce Data Set Version 2.5
    • CR1196, CR1287 and CR1195 (1 January 2013) - ISB 1521 Amd 64/2010 Cancer Outcomes and Services Data Set, Cancer Outcomes and Services Data Set Message and Retirement of Cancer Registration Data Set and National Cancer Data Set

    The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

    • CR1337 (1 April 2013) - ISB 1072 Amd 30/2012 Update to Child and Adolescent Mental Health Services Secondary Uses Data Set

    Release: November 2012

    • CR1166, CR1167 and CR1306 (1 November 2012) - ISB 0092 Amd-16-2010 Commissioning Data Set Version 6-2, Commissioning Data Set XML Message Version 6-2 and Retirement of CDS 6-0
    • CR1305 (1 April 2013) - ISB 0092 Amd 06/2011 Allied Health Professions Referral to Treatment (AHP RTT) Update - CDS 6-2
    • CR1286 (1 November 2012) - ISB 0028 Amd 17/2012 Treatment Function Codes Update
    • CR1343 (Immediate) - DDCN 1343/2012 Change of name for NHS Commissioning Board Authority
    • CR1342 (Immediate) - DDCN 1342/2012 Overseas Visitors Update
    • CR1341 (Immediate) - DDCN 1341/2012 Discharge Default Code Descriptions
    • CR1323 (Immediate) - National Cancer Waiting Times Monitoring Data Set Update for "Delay Reason To Treatment For Cancer"

    CR1323 is a corrigendum to CR1258 (1 July 2012) - ISB 0147 Amd 23/2011 Changes to the National Cancer Waiting Times Monitoring Data Set published in the June 2012 release

    The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

    CR1231 and CR1288 (1 April 2013) - ISB 1570 Amd 164/2010 HIV and AIDS Reporting Data Set and HIV and AIDS Related Data Set Message

    Release: September 2012

    • CR1103 (Immediate) - ISB 0066 Amd 43/2010 Renal Data Set - Data Item Addition, Changes and Deletions
    • CR1334 (Immediate) - DDCN 1334/2012 Psychology Definitions
    • CR1331 (Immediate) - DDCN 1331/2012 Activity Date Time Type
    • CR1329 (Immediate) - DDCN 1329/2012 Change of name for "Health and Social Care Information Centre"

    Release: August 2012

    • CR1326 (Immediate) - DDCN 1326/2012 Health and Care Professions Council
    • CR1241 (Immediate) - DDCN 1241/2012 NHS dictionary of medicines and devices
    • CR1292 (Immediate) - ISB 1549 Amd 4/2011 and DDCN 1292/2012 Deprecation and withdrawal of version 3.2 of the Acute Myocardial Infarction Data Set and subsequent retiring of the Data Set from the NHS Data Model and Dictionary

    Release: June 2012

    • CR1314 (Immediate) - DDCN 1314/2012 Reasonable Offer Update
    • CR1282 (29 June 2012) - ISB 0090 Amd 36/2011 Independent Sector Healthcare Provider (ISHP) Codes extended for ISHPs and Sites
    • CR1258 (1 July 2012) - ISB 0147 Amd 23/2011 Changes to the National Cancer Waiting Times Monitoring Data Set

    Release: May 2012

    • CR1215 (1 June 2012) - ISB 1067 Amd 30/2011 National Workforce Data Set

      The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

    • CR1028 (1 April 2013) - ISB 1069 Amd 14/2012 Children and Young People's Health Services Data Set
    • CR1029 (1 April 2013) - ISB 1072 Amd 12/2012 Child and Adolescent Mental Health Services (CAMHS) Data Set
    • CR1104 (1 April 2013) - ISB 1513 Amd 13/2012 Maternity Secondary Uses Data Set

    Release: March 2012

    Release: January 2012

    Release: November 2011

    • CR1264 (Immediate) - ISB 1077 Amd 3/2012 Automatic Identification and Data Capture (AIDC) for Patient Identification Data Set
    • CR1274 (Immediate) - DDCN 1274/2011 CDS Prime Recipient Identity Update

      The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

    CR1265 (1 April 2012) - ISB 1520 Amd 29/2011 Changes to the Improving Access to Psychological Therapies Data Set

    Release: October 2011

    • CR1271 (Immediate) - DDCN 1271/2011 Commissioning Data Set Addressing Grid Update
    • CR1268 (Immediate) - DDCN 1268/2011 Sexual Orientation Code
    • The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

    • CR1158 and CR1260 (1 April 2012) - ISB 1533 Amd 63/2010 Systemic Anti-Cancer Therapy Data Set and Systemic Anti-Cancer Therapy Data Set Message Schema

      The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 July 2012:

    • CR1270 (1 July 2012) - ISB 1080 Amd 25/2011 Amendments to NHS Health Check Data Set
    • CR1250 (1 July 2012) - ISB 1080 Amd 25/2011 NHS Health Checks Data Set Message Schema Version 2.0.0

    Release: August 2011

    • CR1232 (Immediate) - ISB 0034 Amd 26/2006 Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT) - NHS Data Model and Dictionary Overview
    • CR1222 (1 April 2012) - ISB 0021 Amd 86/2010 Introduction of the International Classification of Diseases Tenth Revision 4th Edition
    • CR1190 (1 September 2011) - ISB 1538 Amd 131/2010 Chlamydia Testing Activity Data Set
    • CR1188 (Immediate) - Amd 85/2010 Genitourinary Medicine Clinic Activity Data Set (GUMCAD) Extension to include Enhanced Sexual Health Services (ESHS)

    The following data set is initially being introduced for local use only. A future Information Standards Notice will be published to notify providers and system suppliers of the requirement to flow the data set nationally:

    Release: July 2011

    • CR1249 (Immediate) - DDCN 1249/2011 General Pharmaceutical Council Registration Changes

    The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 July 2012:

    Release: June 2011

    • CR1256 (Immediate) - DDCN 1256/2011 School Definitions
    • CR1117 (26 August 2011) - ISB 0090 Amd 94/2010 Organisation Data Service Identification Codes for Local Authorities in England and Wales
    • CR1251 (Immediate) - DDCN 1251/2011 Change to the Format/Length of Weekly Hours Worked
    • CR1243 (Immediate) - DDCN 1243/2011 National Interim Clinical Imaging Procedure (NICIP) Code Set

    Release: April 2011

    • CR1154 (1 April 2011) - ISB 0011 Amd 87/2010 Mental Health Minimum Data Set Version 4.0
    • CR1234 (Immediate) - DDCN 1234/2011 Technology Reference Data Update Distribution Service (TRUD)
    • CR1168 (Immediate) - ISB 0097 Amd 140/2010 Genitourinary Medicine Access Monthly Monitoring Data Set Amendments - Removal of Human Immunodeficiency Virus data

    The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

    Release: March 2011

    Release: January 2011

    • CR1116 (1 April 2010) - ISB 0003 Amd 79/2010 Immunisation Programmes Activity Data Set (KC50)
    • CR1112 (1 April 2010) - ISB 1511 Amd 26/2010 NHS Continuing Healthcare and NHS Funded Nursing Care
    • CR1068 (Immediate) - ISB 0133 Amd 161/2010 Change To Central Return: Human Papillomavirus (HPV) Immunisation Programme - Vaccine Monitoring Minimum Data Set
    • CR1211 (Immediate) - DDCN 1211/2010 Commissioning Data Set Addressing Grid / Organisation Code (Code of Commissioner) Update

    Release: December 2010

    Release: November 2010

    • CR1119 (Immediate) - DDCN 1119/2010 Organisation Codes Update
    • CR1192 (Immediate) - DDCN 1192/2010 Change of name for "Health Solution Wales"
    • CR1199 (Immediate) - DDCN 1199/2010 General Pharmaceutical Council and Royal Pharmaceutical Society of Great Britain Update
    • CR1189 (Immediate) - DDCN 1189/2010 National Institute for Health and Clinical Excellence
    • CR1187 (Immediate) - DDCN 1187/2010 Introduction of the Department for Education

    Release: September 2010

    • CR1128 (Immediate) - DDCN 1128/2010 Changes to reporting procedures for Overseas Visitors from the European Economic Area and Switzerland
    • CR1173 (Immediate) - DDCN 1173/2010 Care Quality Commission Update
    • CR1143 (Immediate) - DDCN 1143/2010 General Pharmaceutical Council
    • CR1061 (1 October 2010) - ISB 0092/2010 CDS Type 20: Out-patient: Retirement of Default Codes for Out-patient Procedures
    • CR1133 (Immediate) - ISB 00289/2010 National Specialty List

    Release: August 2010

    • The August 2010 Release introduces the NHS Data Model and Dictionary Help Pages.

    Release: July 2010

    Release: May 2010

    Release: March 2010

    • CR1123 (1 April 2010) - DSCN 18/2010 Information Standards Notice (ISN)
    • CR1139 (Immediate) - DSCN 16/2010 Person Weight
    • CR1130 (Immediate) - DSCN 15/2010 Change of name for "The NHS Information Centre for health and social care"
    • CR1013 (April 2010) - DSCN 14/2010 Sexual and Reproductive Health Activity Dataset (SRHAD)
    • CR1125 (Immediate) - DSCN 13/2010 NHS Data Model and Dictionary Maintenance Update - Policy Definitions
    • CR1122 (Immediate) - DSCN 11/2010 Changes to Family Planning References

    Release: January 2010

    • CR1115 (Immediate) - DSCN 10/2010 Data Standards: Updating of e-Government Interoperability Framework and Government Data Standards Catalogue References

    Release: December 2009

    • CR1100 (Immediate) - DSCN 25/2009 NHS Prescription Services Update
    • CR1045 (1 December 2009) - DSCN 17/2009 Referral to Treatment Clock Stop Administrative Event
    • CR1003 (1 December 2009) - DSCN 16/2009 Commissioning Data Sets: Mandation of 18 Week Referral To Treatment Data Items

    Release: November 2009

    • CR1113 (Immediate) - DSCN 24/2009 Information Standards Board for Health and Social Care Update
    • CR1087 (Immediate) - DSCN 23/2009 Health Professions Council Update
    • CR1081 (Immediate) - DSCN 22/2009 Data Standards: NHS Data Model and Dictionary Maintenance Update
    • CR1019 (27 November 2009) - DSCN 21/2009 Data Standards: Organisation Data Service (ODS) - Optical Sites and Optical Headquarters
    • CR1034 (27 November 2009) - DSCN 20/2009 Data Standards: Organisation Data Service (ODS) - Care Homes in England and Wales and their Headquarters

    Release: September 2009

    • CR1065 (1 October 2009) - DSCN 15/2009 Data Standards: Organisation Data Service, Local Health Boards

    Release: June 2009

    • CR1014 (1 June 2009) - DSCN 13/2009 Religious and Other Belief System Affiliation
    • CR1074 (Immediate) - DSCN 12/2009 Data Standards: Care Quality Commission
    • CR1056 (Immediate) - DSCN 11/2009 Data Standards: NHS Data Model and Dictionary Maintenance Update
    • CR1072 (1 December 2009) - DSCN 10/2009 Data Standards: National Radiotherapy Data Set
    • CR1073 (Immediate) - DSCN 09/2009 Central Returns: Diagnostic Waiting Times and Activity Data Set
    • CR1066 (Immediate) - DSCN 08/2009 Data Standards: NHS Prescription Services and NHS Dental Services
    • CR1047 (1 April 2011) - DSCN 07/2009 Data Standards: Diabetic Retinopathy Screening Dataset v3.6
    • CR1047 (1 April 2009) - DSCN 07/2009 Data Standards: Diabetic Retinopathy Screening Dataset v3.6
    • CR1059 (Immediate) - DSCN 06/2009 Data Standard: National Workforce Data Set v2.1
    • CR914 (April 2008 (Retrospective)) - DSCN 05/2009 NHS Stop Smoking Services Quarterly Monitoring Return
    • CR899 (Immediate) - DSCN 02/2009 NHS Data Model and Dictionary Maintenance Update

    Release: March 2009

    • CR1001 (1 April 2009) - DSCN 03/2009 Introduction of Commissioning Data Set Schema Version 6-1 (2008-04-01) and update to Commissioning Data Set Schema Version 6-0 (2008-01-14)
    • CR976 (31 March 2009) - DSCN 26/2008 Subject: KP90 - Admissions, Changes in Status and Detentions under the Mental Health Act
    • CR1017 (1 April 2009) - DSCN 25/2008 Critical Care Minimum Data Set
    • CR1002 (1 April 2009) - DSCN 24/2008 Data Standards: Introduction of Commissioning Dataset Version 6.1
    • CR1016 (Immediate) - DSCN 23/2008 4 Byte Version of the Read Codes - Withdrawal

    Release: December 2008

    • CR1022 (1 January 2009) - DSCN 29/2008 Data Standards: 18 Weeks Referral to Treatment (RTT) Time, Performance Sharing
    • CR901 (Immediate) - DSCN 28/2008 Removal of references to EDIFACT and the NHS Wide Clearing Service (NWCS)
    • CR843 (1 April 2009) - DSCN 22/2008 Data Standards: National Radiotherapy Data Set
    • CR1011 (1 January 2009) - DSCN 20/2008 Data Standards: National Cancer Waiting Times Minimum Data Set

    Release: November 2008

    • CR1026 (3 November 2008) - DSCN 21/2008 Information Standard: Mental Health Act 2007 Mental Category

    Release: August 2008

    • CR1018 (Immediate) - DSCN 19/2008 Data Standards: Change of Name for National Administrative Code Services (NACS) to Organisation Data Service (ODS)
    • CR956 (1 September 2008) - DSCN 18/2008 Central Return: Human Papillomavirus (HPV) Immunisation Programme, Vaccine Monitoring Minimum Dataset
    • CR861 (Immediate) - DSCN 16/2008 Central Return: Hospital and Community Services Complaints and General Practice (including Dental) Complaints - KO41(a) and KO 41(b)
    • CR964 (Immediate) - DSCN 14/2008 Central Return: 18 Weeks ‘Adjusted’ Referral to Treatment (RTT) Dataset
    • CR965 (Immediate) - DSCN 13/2008 Data Standards: Organisation Data Service (ODS) - Change to the Default Codes Set to Support Changes to GMS Contract
    • CR879 (Immediate) - DSCN 12/2008 Data Standards: Quarterly Monitoring: Cancelled Operations Data Set (QMCO)

    Release: May 2008

    • CR502 (Immediate) - DSCN 10/2008 Data Standards: National Workforce Data Definitions (v2.0)
    • CR910 (1 April 2008) - DSCN 08/2008 Data Standards: National Direct Access Audiology Patient Tracking List (PTL) and Waiting Times (WT) data sets
    • CR900 (Immediate) - DSCN 07/2008 Data Standards: Inter-Provider Transfer Administrative Minimum Data Set
    • CR934 (1 April 2008) - DSCN 06/2008 Data Standards: Mental Health Minimum Data Set (version 3.0)
    • CR935 (Immediate) - DSCN 05/2008 Data Standards: 18 Weeks Rules Suite
    • CR925 (1 September 2008) - DSCN 04/2008 Genitourinary Medicine Clinic Activity Data Set Change to an Information Standard
    • CR942 (1 June 2008) - DSCN 03/2008 General Practice and General Medical Practitioner (GMP) - changes resulting from the introduction of the General Medical Services (GMS) Contract

    Release: February 2008

    • CR812 (Immediate) - DSCN 01/2008 Central Return: Diagnostics Waiting Times Census Data Set
    • CR881 (31 December 2007) - DSCN 42/2007 Central Return: Referral To Treatment Summary Patient Tracking List
    • CR904 (Immediate) - DSCN 41/2007 Data Standards: Admission Intended Procedure Update
    • CR824 (1 February 2008) - DSCN 39/2007 Data Standards: 48 Hour Genitourinary Medicine Access Monthly Monitoring (GUMAMM)

    Release: November 2007

    • CR919 (Immediate) - DSCN 38/2007 Data Standards: Mental Health Minimum Data Set Schema
    • CR814 (1 April 2008) - DSCN 37/2007 Data Standards: Introduction of Mental Health Minimum Data Set version 2.1
    • CR930 (31 December 2007) - DSCN 35/2007 Data Standards: A correction to the version 6 Commissioning Data Set schema
    • CR834 (Immediate) - DSCN 34/2007 Data Standards: Referral Request Received Date
    • CR875 (Immediate) - DSCN 33/2007 Data Standards: National Administrative Codes Service: Introduction of codes for the new Pan SHAs
    • CR880 (Immediate) - DSCN 29/2007 Data Standards: Amendments to Doctor Index Number (DIN) Description

    Release: August 2007

    • CR845 (Immediate) - DSCN 28/2007 Data Standards: Treatment Function Code (Referral to Treatment Period)
    • CR831 (1 October 2007) - DSCN 27/2007 Data Standards: Update to Commissioning Data Set XML Schema v5
    • CR825 (1 October 2007) - DSCN 16/2007 Data Standards: Source of Referral for Outpatients (18 Weeks)

    Release: June 2007

    • CR799 (31 December 2007) - DSCN 18/2007 Data Standards: Introduction of Commissioning Data Set Version 6
    • CR833 (Immediate) - DSCN 17/2007 Data Standards: Introduction of Commissioning Data Set validation table
    • CR801 (Immediate) - DSCN 15/2007 Data Standards: Cover of Vaccination Evaluated Rapidly (COVER) Return

    Release: May 2007

    • CR800 (31 December 2007) - DSCN 14/2007 Commissioning Data Set Schema Version 6-0
    • CR856 (1 October 2007) - DSCN 13/2007 Data Standards: Discharge Ready Date
    • CR869 (Immediate) - DSCN 12/2007 Data Standards: Update to Clinical Coding Introduction
    • CR827 (1 October 2007) - DSCN 09/2007 Data Standards: Earliest Reasonable Offer Date
    • CR817 (1 October 2007) - DSCN 08/2007 Data Standards: Introduction of Age into Commissioning Data Sets
    • CR849 (May 2007) - DSCN 07/2007 National Administrative Codes Service: Introduction of new identification codes for Dental Consultants
    • CR822 (Immediate) - DSCN 06/2007 Data Standards: Update to Organisation Codes
    • CR850 (Immediate) - DSCN 05/2007 National Administrative Codes Service: Amendments to Default Codes
    • CR786 (1 April 2007) - DSCN 04/2007 Quarterly Monitoring Accident and Emergency Services (QMAE) Central Return

    Release: February 2007

    • CR811 (Immediate) - DSCN 03/2007 Diagnostic Waiting Times and Activity
    • CR826 (1 October 2007) - DSCN 02/2007 Extension of Treatment Function to Support the Measurement of 18 Week Referral to Treatment Periods
    • CR813 (1 April 2007) - DSCN 01/2007 Paediatric Critical Care Minimum Data Set
    • CR768 (1 January 2007) - DSCN 18/2006 Changes to the NHS Data Dictionary to support the measurement of 18 week referral to treatment periods
    • CR798 (6 November 2006) - DSCN 19/2006 Commissioning Data Set (CDS) Version 5 XML Message Schema
    • CR776 (1 October 2006) - DSCN 05/2006 Data Standards: Accident and Emergency Enhancements to Investigation and Treatment Codes

    Release: September 2006

    • CR795 (31 October 2006) - DSCN 22/2006 Organisation Codes / Organisation Site Codes
    • CR792 (1 April 2007) - DSCN 15/2006 Neonatal Critical Care
    • CR719 (1 April 2006) - DSCN 09/2006 Measuring and Recording of Waiting Times
    • CR791 (1 April 2007) - DSCN 13/2006 Priority Type
    • CR774 (1 September 2006) - DSCN 12/2006 Person Marital Status

    Release: May 2006

    • CR764 (1 April 2006) - DSCN 08/2006 Diagnostics waiting times and activity
    • Correction to menu structure to include Critical Care Minimum Data Set

    Release: April 2006

    • CR608 (1 October 2006) - DSCN 07/2006 Introduction of Commissioning Data Set Version 5 and its associated XML schema into the NHS Data Dictionary.
    • CR756 (1 September 2005) - DSCN 19/2005 PbR Commissioning for Out of Area Treatments (OATs) and Charge-Exempt Overseas Visitors
    • CR724 (1 April 2006) - DSCN 13/2005 Critical Care Minimum Data Set
    • CR754 (1 April 2006) - DSCN 17/2005 Treatment Function and Main Specialty Code Revisions
    • CR763 (1 April 2006) - DSCN 20/2005 New Treatment Functions for therapy services and anticoagulant service
    • CR767 (Immediate) - DSCN 02/2006 Referral Request Received Date
    • CR690 (1 September 2005) - DSCN 16/2005 Marital Status

    Release: August 2005

    • CR555 (1 April 2005) - DSCN 11/2005 Data Standards: COVER - Hepatitis B immunisation for babies
    • CR715 (Immediate) - DSCN 10/2005 Data Standards: Treatment Function Codes - correction and clarification of names and descriptions
    • CR706 (1 April 2005) - DSCN 09/2005 Data Standards: Cancer Registration Data Set
    • CR691 (1 July 2005) - DSCN 06/2005 Data Standards: NSCAG Commissioner Code

    top


    GESTATION LENGTH IN DAYS

    Change to Attribute: Changed Description

    The gestation length of a Fetus Episode recorded as the total number of days.

    The calculation may be:

    a.  calculated by ultrasound scan measurements according to the trimester of the scan
    b.  estimated from the LAST MENSTRUAL PERIOD DATE  estimated from the LAST MENSTRUAL PERIOD DATE
    c.  estimated by clinical assessment (in the absence of a. or b.)

    The number of completed whole weeks of gestation and the remaining number of days of an uncompleted whole week should be calculated from the GESTATION LENGTH IN DAYS for input and reporting purposes. Where there is no uncompleted whole week, the number of additional days should be recorded as zero.

    For example:

     

    top


    IMMUNISATION AGE GROUP

    Change to Attribute: Changed Description

    The age groups at which an Immunisation Programme is aimed.

    Classification:National Codes:

    01Completing primary course up to age 1 year
    02Completing primary course up to age 2 years
    03Completing primary course or receiving a booster by the age of 5 years
    04Elderly Adult
    05Reaching first birthday with maternal Hepatitis B Status positive
    06Reaching second birthday with maternal Hepatitis B Status positive
    07Receiving a booster by the age of 2 years
    08Age 13 years
    09Age 14 years
    10Age 15 years
    11Age 16 years
    12Age 17 years
    13Age 18 years
    14Age 13 - 18 years
    15Age 1 - 5 years
    16Age 6 - 15 years
    17Age 16 years and over
    96Other
     

    top


    ANATOMICAL SIDE (NATIONAL JOINT REGISTRY)

    Change to Data Element: Changed linked Attribute, Description

    Format/Length:an1
    National Codes: 
    Default Codes: 

    Notes:
    ANATOMICAL SIDE (NATIONAL JOINT REGISTRY) is the same as attribute ANATOMICAL SIDE, for the purpose of the National Joint Registry Data Set.ANATOMICAL SIDE (NATIONAL JOINT REGISTRY) is the side of the body, for the purpose of the National Joint Registry Data Set.

    Permitted National Codes:

    CODENJR CODEDESCRIPTION
    1LLeft
    2RRight
    LLeft
    RRight
     

    top


    ANATOMICAL SIDE (NATIONAL JOINT REGISTRY)

    Change to Data Element: Changed linked Attribute, Description

    ANATOMICAL SIDE (NATIONAL JOINT REGISTRY)
     
    Attribute:
    ANATOMICAL SIDE

    top


    ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE (NATIONAL JOINT REGISTRY)

    Change to Data Element: Changed linked Attribute, Description

    Format/Length:an1
    National Codes: 
    Default Codes: 

    Notes:
    ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE (NATIONAL JOINT REGISTRY) is the same as attribute ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE, for the purpose of the National Joint Registry Data Set.ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE (NATIONAL JOINT REGISTRY) is the physical status of the PATIENT as recorded by an anaesthetist for the operative procedure, for the purpose of the National Joint Registry Data Set.

    The National Joint Registry Data Set National Codes are based on the American Society of Anesthesiologists (ASA) Physical Status Classification System. For further information see the American Society of Anesthesiologists website at: ASA Physical Status Classification System. 

    Permitted National Codes:

    CODENJR CODEDESCRIPTIONNJR DESCRIPTION
    11A normal healthy PATIENT Fit and healthy
    22A PATIENT with mild systemic diseaseMild disease; not incapacitating
    33A PATIENT with severe systemic diseaseIncapacitating systemic disease
    44A PATIENT with severe systemic disease that is a constant threat to lifeLife threatening disease
    58A moribund PATIENT who is not expected to survive without the operationExpected to die within 24hrs with or without an operation
    1Fit and healthy
    2Mild disease; not incapacitating
    3Incapacitating systemic disease
    4Life threatening disease
    8Expected to die within 24hrs with or without an operation
     

    top


    ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE (NATIONAL JOINT REGISTRY)

    Change to Data Element: Changed linked Attribute, Description

    ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE (NATIONAL JOINT REGISTRY)
     
    Attribute:
    ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE

    top


    CONSULTANT CODE

    Change to Data Element: Changed Description

    Format/Length:an8
    National Codes: 
    ODS Default Codes:C9999998 - CONSULTANT, GENERAL MEDICAL COUNCIL REFERENCE NUMBER not known
     CD999998 - Dental CONSULTANT: GENERAL MEDICAL COUNCIL REFERENCE NUMBER / GENERAL DENTAL COUNCIL REGISTRATION NUMBER not known
     D9999998 - Dentist, GENERAL DENTAL PRACTITIONER CODE not known
     M9999998 - MIDWIFE 
     N9999998 - NURSE 
     H9999998 - Other health care professional

    Notes:
    CONSULTANT CODE is the same as attribute CONSULTANT CODE.

    All Midwife Episodes and attendances are identified in the Commissioning Data Sets and Hospital Episode Statistics by a pseudo CARE PROFESSIONAL MAIN SPECIALTY CODE, 560, see Main Specialty and Treatment Function Codes Table. An Organisation Data Service Default Code is used in the CONSULTANT CODE field to show that a MIDWIFE is the responsible CARE PROFESSIONAL. Note that the MIDWIFE's own Nursing and Midwifery Council code is not used.

    All Nursing Episodes and attendances are identified in the Commissioning Data Sets and Hospital Episode Statistics by a pseudo CARE PROFESSIONAL MAIN SPECIALTY CODE, 950, see Main Specialty and Treatment Function Codes Table. An Organisation Data Service Default Code is used in the CONSULTANT CODE field to show that a NURSE is the responsible CARE PROFESSIONAL. Note that the NURSE's own Nursing and Midwifery Council code is not used.

    CONSULTANT CODE will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition. 

    top


    CONSULTANT CODE (FIRST SEEN)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (FIRST SEEN) is the same as data element CONSULTANT CODE.

    CONSULTANT CODE (FIRST SEEN) is the CONSULTANT CODE of the CONSULTANT who first sees the PATIENT following the initial referral. 

    For the Cancer Outcomes and Services Data Set, CONSULTANT CODE (FIRST SEEN) is the CONSULTANT CODE of the CONSULTANT who first sees the PATIENT following the initial referral which leads to the cancer diagnosis.

     CONSULTANT CODE (FIRST SEEN) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    CONSULTANT CODE (INITIATED SYSTEMIC ANTI-CANCER THERAPY)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (INITIATED SYSTEMIC ANTI-CANCER THERAPY) is the same as data element CONSULTANT CODE.

    For the Systemic Anti-Cancer Therapy Data Set, CONSULTANT CODE (INITIATED SYSTEMIC ANTI-CANCER THERAPY) is the CONSULTANT CODE of the CONSULTANT who initiated the Chemotherapy.

     CONSULTANT CODE (INITIATED SYSTEMIC ANTI-CANCER THERAPY) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    CONSULTANT CODE (MULTIDISCIPLINARY TEAM LEAD)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (MULTIDISCIPLINARY TEAM LEAD) is the same as data element CONSULTANT CODE.

    CONSULTANT CODE (MULTIDISCIPLINARY TEAM LEAD) is the CONSULTANT CODE of the Multidisciplinary Team Lead responsible for the management and decisions made at the Multidisciplinary Team Meeting.

     CONSULTANT CODE (MULTIDISCIPLINARY TEAM LEAD) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    CONSULTANT CODE (PATHOLOGIST)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (PATHOLOGIST) is the same as data element CONSULTANT CODE.

    CONSULTANT CODE (PATHOLOGIST) is the CONSULTANT CODE of the pathologist who authorises the Pathology Laboratory Service Report.

     CONSULTANT CODE (PATHOLOGIST) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    CONSULTANT CODE (RESPONSIBLE CONSULTANT)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (RESPONSIBLE CONSULTANT) is the same as data element CONSULTANT CODE.

    CONSULTANT CODE (RESPONSIBLE CONSULTANT) is the CONSULTANT CODE of the CONSULTANT in overall charge of the PATIENT.

     CONSULTANT CODE (RESPONSIBLE CONSULTANT) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    CONSULTANT CODE (RESPONSIBLE SURGEON)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (RESPONSIBLE SURGEON) is the same as data element CONSULTANT CODE.

    CONSULTANT CODE (RESPONSIBLE SURGEON) is the CONSULTANT CODE of the CONSULTANT surgeon responsible for the Patient Procedure.

     CONSULTANT CODE (RESPONSIBLE SURGEON) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    CONSULTANT CODE (TREATMENT)

    Change to Data Element: Changed Description

    Format/Length:See CONSULTANT CODE
    National Codes: 
    Default Codes: 

    Notes:
    CONSULTANT CODE (TREATMENT) is the same as data element CONSULTANT CODE.

    CONSULTANT CODE (TREATMENT) is the CONSULTANT CODE of the CONSULTANT responsible for the treatment of the PATIENT.

     CONSULTANT CODE (TREATMENT) will be replaced with both PROFESSIONAL REGISTRATION ISSUER CODE and PROFESSIONAL REGISTRATION ENTRY IDENTIFIER, which are the most recently approved national information standards to describe the required definition.

     

    top


    NHS NUMBER

    Change to Data Element: Changed Description

    Format/Length:n10
    National Codes: 
    Default Codes: 

    Notes:
    NHS NUMBER is the same as attribute NHS NUMBER.

    For the AIDC for Patient Identification Data SetNHS NUMBER must be displayed in accordance with the NHS Common User Interface Information Standard - NHS Number Input and Display (ISB 1504).

    For the Cancer Outcomes and Services Data Set, NHS NUMBER can be recorded as well as or instead of LOCAL PATIENT IDENTIFIER (EXTENDED) as part of a Cancer Care Spell.

     

    top


    PDS ETHNIC CATEGORY CODE

    Change to Data Element: Changed Description

    Format/Length:max an2
    National Codes: 
    Default Codes: 

    Notes:
    PDS ETHNIC CATEGORY CODE is the same as attribute ETHNIC CATEGORY CODEPDS ETHNIC CATEGORY CODE is based on the attribute ETHNIC CATEGORY CODE

    For the Personal Demographics Service Birth Notification Data Sets PDS ETHNIC CATEGORY CODE is the coded value for the ethnicity of a PERSON. It is not the same as data element ETHNIC CATEGORY.

    PDS ETHNIC CATEGORY CODE must be recorded using the National Codes listed below.

    Permitted National Codes:

    ABritish, Mixed British
    BIrish
    CAny other White background
    C2Northern Irish
    C3Other white, white unspecified
    CAEnglish
    CBScottish
    CCWelsh
    CDCornish
    CECypriot (part not stated)
    CFGreek
    CGGreek Cypriot
    CHTurkish
    CJTurkish Cypriot
    CKItalian
    CLIrish Traveller
    CMTraveller
    CNGypsy/Romany
    CPPolish
    CQAll republics which made up the former USSR
    CRKosovan
    CSAlbanian
    CTBosnian
    CUCroatian
    CVSerbian
    CWOther republics which made up the former Yugoslavia
    CXMixed white
    CYOther white European, European unspecified, European mixed
    DWhite and Black Caribbean
    EWhite and Black African
    FWhite and Asian
    GAny other mixed background
    GABlack and Asian
    GBBlack and Chinese
    GCBlack and White
    GDChinese and White
    GEAsian and Chinese
    GFOther Mixed, Mixed Unspecified
    HIndian or British Indian
    JPakistani or British Pakistani
    KBangladeshi or British Bangladeshi
    LAny other Asian background
    LAMixed Asian
    LBPunjabi
    LCKashmiri
    LDEast African Asian
    LESri Lanka
    LFTamil
    LGSinhalese
    LHBritish Asian
    LJCaribbean Asian
    LKOther Asian, Asian unspecified
    MCaribbean
    NAfrican
    PAny other Black background
    PASomali
    PBMixed Black
    PCNigerian
    PDBlack British
    PEOther Black, Black unspecified
    RChinese
    SAny other ethnic group
    SAVietnamese
    SBJapanese
    SCFilipino
    SDMalaysian
    SEAny Other Group
    ZNot stated
     

    top


    PERSON STATED GENDER CODE (NATIONAL JOINT REGISTRY)

    Change to Data Element: Changed linked Attribute, Description

    Format/Length:an1
    National Codes: 
    Default Codes: 

    Notes:
    PERSON STATED GENDER CODE (NATIONAL JOINT REGISTRY) is the same as attribute PERSON STATED GENDER CODE for the purpose of the National Joint Registry Data SetPERSON STATED GENDER CODE (NATIONAL JOINT REGISTRY) is the gender of a PERSON, for the purpose of the National Joint Registry Data Set.

    Permitted National Codes:

    CODENJR CODEDESCRIPTIONNJR DESCRIPTION
    11MaleMale
    22FemaleFemale
    99Indeterminate (unable to be classified as either male or female)Not Specified
    X0Not Known (not recorded)Not Known
    1Male
    2Female
    9Not Specified
    0Not Known
     

    top


    PERSON STATED GENDER CODE (NATIONAL JOINT REGISTRY)

    Change to Data Element: Changed linked Attribute, Description

    PERSON STATED GENDER CODE (NATIONAL JOINT REGISTRY)
     
    Attribute:
    PERSON STATED GENDER CODE

    top


    WITHHELD IDENTITY REASON

    Change to Data Element: Changed Description

    Format/Length:an2
    National Codes: 
    Default Codes:99 - Identity withheld but reason not known

    Notes:
    WITHHELD IDENTITY REASON is used in Data Group 'Withheld Identity Structure' in the Commissioning Data Sets (version 6-2 onwards).  It allows suppliers of Commissioning Data Set records to indicate to recipients of the record (for example, the Commissioner of the activity) that the record has been purposely anonymised for a valid reason.

    Permitted National Codes:

    01Record anonymised for legal/statutory reasons
    02Record anonymised at request of Caldicott Guardian
    03Record anonymised at request of PATIENT
    97Record anonymised for other reason

     

     

    top


    For enquiries about this Change Request, please email information.standards@nhs.net

    ISO 9001 CERTIFICATION EUROPE