NHS Breast Screening Programme Central Return Data Set (KC62)

IntroductionThe NHS Breast Screening Programme Central Return Data Set (KC62) provides information to the NHS Breast Screening Programme from Breast Screening Units on the processes and outcomes of the call and recall system.

Overview

Introduction

The NHS Breast Screening Programme Central Return Data Set (KC62)  provides information to the NHS Breast Screening Programme  from Breast Screening Units  on the processes and outcomes of the call and recall system. Screening Programmes  are supported by the UK National Screening Committee.

The information is used:

The NHS Breast Screening Programme Central Return Data Set (KC62)  is analysed by  NHS Digital  and also used by the Public Health Research Unit to evaluate the effectiveness of Breast Screening.  It is also used by the Regional Breast Screening Quality Assurance Reference Centres as part of the quality assurance process, and enables on-going monitoring of their individual programmes and comparisons within their regions and with England overall.

Collection

The NHS Breast Screening Programme Central Return Data Set (KC62)  requires information on women invited for Breast Screening, the outcome of the  Breast Screening  and further information on each cancer detected.  It is completed annually and submitted by the end of the October following the end of the REPORTING PERIOD  to which the data relates.

Women are included in the NHS Breast Screening Programme Central Return Data Set (KC62)  only if the test date offered or SCREENING TEST DATE  was within the review period.  All Screening Tests  taking place within the  REPORTING PERIOD are counted.  One woman may not have more than one outcome of cancer in the REPORTING PERIOD.  Women who are referred directly for a Screening Test  (rather than an invitation as part of a Screening Programme) are also included if the SCREENING TEST DATE  is within the REPORTING PERIOD.

Submission

Parts One to Five of the NHS Breast Screening Programme Central Return Data Set (KC62)  should be reported for Tables A to T.

TABLE DESCRIPTION

A*

First invitation for routine screening

B*

Routine invitation to previous non-attenders

C1*

Return invitation to previous attenders (last screen within 5 years)

C2

Return invitation to previous attenders (last screen more than 5 years)

D

Short term recall

E

Self/GP referrals of women not previously screened

F1

Self/GP referrals of women previously screened (last screen within 5 years)

F2

Self/GP referrals of women previously screened (last screen more than 5 years previously)

T

All invitations and screenings: Sum of Tables A - F2

* INVASIVE BREAST CANCER TOTAL OBSERVED, INVASIVE BREAST CANCER TOTAL EXPECTED  and STANDARDISED DETECTION RATIO TOTAL  are only appropriate for tables A, B and C1.

The NHS Breast Screening Programme Central Return Data Set (KC62)  is submitted in csv file format.

Specification

Organisation and reporting period

To carry details of the reporting organisation and the reporting period. One occurrence of this group is required.

Mandation

Data Elements

REPORTING PERIOD START DATE

REPORTING PERIOD END DATE

ORGANISATION IDENTIFIER (BREAST SCREENING UNIT)

Unit Indicators

One occurrence of this group is required.

Mandation

Data Elements

BREAST SCREENING READING TYPE AUTOMATIC RECALL WHEN UNANIMOUS (PERCENTAGE)

BREAST SCREENING READING TYPE AUTOMATICALLY CHOOSE ABNORMAL (PERCENTAGE)

BREAST SCREENING READING TYPE ARBITRATE WHEN ABNORMAL (PERCENTAGE)

BREAST SCREENING READING TYPE NO AUTOMATIC ARBITRATION (PERCENTAGE)

WOMEN WITH FIRST OFFERED APPOINTMENT WITHIN 36 MONTHS OF PREVIOUS SCREEN (PERCENTAGE)

ROUTINE DIGITAL SCREEN (PERCENTAGE)

Part One

Invitations and Outcomes: To carry the details of the outcomes of screening and assessment of all women invited and/or screened.Multiple occurrences of this group are permitted, one for each AGE GROUP reported.

Mandation

Data Elements

BREAST SCREENING AGE GROUP CODE (KC62) PARTS 1 TO 3

WOMEN INVITED FOR SCREENING IN PERIOD TOTAL

WOMEN LOST TO FOLLOW-UP TOTAL (AFTER TECHNICALLY INADEQUATE SCREENING MAMMOGRAM)

WOMEN SCREENED TOTAL (TECHNICALLY ADEQUATE)

OUTCOME OF INITIAL SCREEN NOT KNOWN TOTAL

OUTCOME OF INITIAL SCREEN ROUTINE RECALL TOTAL

OUTCOME OF INITIAL SCREEN REFERRED FOR ASSESSMENT TOTAL

FINAL OUTCOME OF ASSESSMENT FAILED TO ATTEND TOTAL

FINAL OUTCOME OF ASSESSMENT NOT KNOWN TOTAL

FINAL OUTCOME OF ASSESSMENT ROUTINE RECALL TOTAL

FINAL OUTCOME OF ASSESSMENT SHORT TERM RECALL TOTAL

FINAL OUTCOME OF ASSESSMENT CANCER DIAGNOSED TOTAL

Part Two

Assessment:To carry the details of the outcomes of assessment by the procedures involved for all women assessed as a result of screening. Multiple occurrences of this group are permitted, one for each AGE GROUP reported.

Mandation

Data Elements

BREAST SCREENING AGE GROUP CODE (KC62) PARTS 1 TO 3

WOMEN WITH CANCER DIAGNOSED WITHOUT CYTOLOGY OR HISTOLOGY TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY REFERRED FOR CYTOLOGY AND OR CORE BIOPSY TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY NO RESULT OR INADEQUATE RESULT TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY ROUTINE RECALL TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY SHORT TERM RECALL TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY NOT REFERRED FOR OPEN BIOPSY CANCER TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING CYTOLOGY AND OR CORE BIOPSY REFERRED FOR OPEN BIOPSY TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY NO RESULT OR INADEQUATE RESULT TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY RESULT BENIGN OR NORMAL ROUTINE RECALL TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY RESULT BENIGN OR NORMAL SHORT TERM RECALL TOTAL

OUTCOME OF ASSESSMENT UP TO AND INCLUDING OPEN BIOPSY CANCER DIAGNOSED TOTAL

Part Three

Cancer Diagnosed:To carry the details of the cancers formally diagnosed in women assessed as a result of screening. Only breast cancers should be reported. Multiple occurrences of this group are permitted, one for each AGE GROUP reported.

Mandation

Data Elements

BREAST SCREENING AGE GROUP CODE (KC62) PARTS 1 TO 3

WOMEN WITH CANCER TOTAL

WOMEN INVASIVE STATUS NOT KNOWN TOTAL

WOMEN NON-INVASIVE OR POSSIBLY MICRO-INVASIVE TOTAL

WOMEN DEFINITELY MICRO-INVASIVE TOTAL

BREAST CANCER INVASIVE SIZE LESS THAN 10mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 10mm AND LESS THAN 15mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 15mm AND LESS THAN 20mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 20mm AND LESS THAN 50mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 50mm TOTAL

BREAST CANCER INVASIVE SIZE NOT KNOWN TOTAL

INVASIVE BREAST CANCER TOTAL

Part Four

Outcome Measures:To carry the details of outcome measures related to NHS Breast Screening Programme (NHSBSP) quality targets.Multiple occurrences of this group are permitted, one for each AGE GROUP reported.

Mandation

Data Elements

BREAST SCREENING AGE GROUP CODE (KC62) PARTS 4 TO 5

WOMEN INVITED FOR ROUTINE SCREENING WITH TECHNICALLY ADEQUATE RESULT (PERCENTAGE OF INVITED)

REFERRAL RATE FOR BREAST ASSESSMENT (PERCENTAGE OF SCREENED)

NON-INVASIVE OR MICRO-INVASIVE BREAST CANCERS DETECTED (PER 1,000 SCREENED)

BENIGN BIOPSY RATE (PER 1,000 SCREENED)

BENIGN THERAPEUTIC OPERATION NUMBER

BENIGN THERAPEUTIC OPERATION RATE (PER 1,000 SCREENED)

INVASIVE BREAST CANCER DETECTION RATE (PER 1,000 SCREENED)

INVASIVE BREAST CANCER DETECTION RATE INVASIVE SIZE LESS THAN 10mm (PER 1,000 SCREENED)

INVASIVE BREAST CANCER DETECTION RATE INVASIVE SIZE LESS THAN 15mm (PER 1,000 SCREENED)

REFERRAL RATE FOR CYTOLOGY AND OR CORE BIOPSY (PERCENTAGE OF SCREENED)

REFERRAL RATE FOR OPEN BIOPSY (PERCENTAGE OF SCREENED)

NON-OPERATIVE DIAGNOSIS RATE (PERCENTAGE INVASIVE)

NON-OPERATIVE DIAGNOSIS RATE (PERCENTAGE NON-INVASIVE)

NON-OPERATIVE DIAGNOSIS RATE (PERCENTAGE OVERALL)

SHORT TERM RECALL RATE FOLLOWING ASSESSMENT (PERCENTAGE OF SCREENED)

INVASIVE BREAST CANCER TOTAL OBSERVED

INVASIVE BREAST CANCER TOTAL EXPECTED

STANDARDISED DETECTION RATIO TOTAL

Part Five

Data Completeness Indicators:To carry the details of the completeness of data recorded on information systems in a variety of key areas. Multiple occurrences of this group are permitted, one for each AGE GROUP reported.

Mandation

Data Elements

BREAST SCREENING AGE GROUP CODE (KC62) PARTS 4 TO 5

BREAST ASSESSMENT RESULT NOT KNOWN (PERCENTAGE OF REFERRED)

CYTOLOGY AND OR CORE BIOPSY RESULT NOT KNOWN (PERCENTAGE OF REFERRED)

OPEN BIOPSY RESULT NOT KNOWN (PERCENTAGE OF REFERRED)

BREAST CANCER INVASIVE STATUS NOT KNOWN (PERCENTAGE OF ALL CANCERS DIAGNOSED)

INVASIVE BREAST CANCER SIZE NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)

INVASIVE BREAST CANCER LYMPH NODE STATUS NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)

INVASIVE BREAST CANCER GRADE NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)

INVASIVE BREAST CANCER SPECIAL TYPE NOT KNOWN (PERCENTAGE OF INVASIVE BREAST CANCERS)

BREAST CANCER GRADE NOT KNOWN (PERCENTAGE OF DUCTAL CARCINOMA IN-SITU)

Annex

Cancers Detected:To carry the details of each cancer detected by the Screening Service in the review period. Multiple occurrences of this group are permitted, one CANCER per WOMAN detected.

Mandation

Data Elements

AGE AT FIRST OFFERED APPOINTMENT

BREAST CANCER INVASIVE STATUS

INVASIVE TUMOUR SIZE

TUMOUR GRADE (FOR BREAST SCREENING)

NODAL STATUS OF TUMOUR NUMBER OF LYMPH NODES SAMPLED

NODAL STATUS OF TUMOUR NUMBER OF POSITIVE LYMPH NODES SAMPLED

NODAL STATUS OF TUMOUR NUMBER OF NEGATIVE LYMPH NODES SAMPLED

BREAST CANCER HISTOLOGICAL TYPE

High Risk Table U

To carry the details of women invited, screened, assessed and cancers detected in a high risk category.Multiple occurrences of this group are permitted, one for each RISK CATEGORY detected.

Mandation

Data Elements

BREAST SCREENING HIGH RISK CATEGORY

HIGH RISK WOMEN INVITED FOR SCREENING IN PERIOD TOTAL

HIGH RISK WOMEN SCREENED TOTAL (TECHNICALLY ADEQUATE)

OUTCOME OF INITIAL SCREEN REFERRED FOR ASSESSMENT TOTAL

WOMEN ATTENDED FOR ASSESSMENT TOTAL

FINAL OUTCOME OF ASSESSMENT SHORT TERM RECALL TOTAL

FINAL OUTCOME OF ASSESSMENT CANCER DIAGNOSED TOTAL

BREAST CANCER INVASIVE SIZE LESS THAN 10mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 10mm AND LESS THAN 15mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 15mm AND LESS THAN 20mm TOTAL

BREAST CANCER INVASIVE SIZE GREATER THAN OR EQUAL TO 20mm AND LESS THAN 50mm TOTAL

BREAST CANCER INVASIVE SIZE NOT KNOWN TOTAL

INVASIVE BREAST CANCER TOTAL

WOMEN LYMPH NODES PATHOLOGY RESULT NEGATIVE TOTAL

WOMEN LYMPH NODES PATHOLOGY RESULT POSITIVE TOTAL

WOMEN LYMPH NODES PATHOLOGY RESULT UNKNOWN TOTAL

High Risk Annex

 To carry the details of each cancer detected in women in a high risk category.Multiple occurrences of this group are permitted, one for each WOMAN screened.

Mandation

Data Elements

BREAST SCREENING HIGH RISK CATEGORY

AGE OR PROTOCOL AGE

BREAST CANCER INVASIVE STATUS

INVASIVE TUMOUR SIZE

TUMOUR GRADE (FOR BREAST SCREENING)

SENTINEL NODE PROCEDURE

NODAL STATUS OF TUMOUR NUMBER OF LYMPH NODES SAMPLED

NODAL STATUS OF TUMOUR NUMBER OF POSITIVE LYMPH NODES SAMPLED

NODAL STATUS OF TUMOUR NUMBER OF NEGATIVE LYMPH NODES SAMPLED

BREAST CANCER HISTOLOGICAL TYPE

Also Known As

This data set is also known by these names:

Context Alias
Short name Breast Screening (KC62)