Female Genital Mutilation Data Set

IntroductionThe Female Genital Mutilation Data Set provides essential information in relation to the female genital mutilation population across England.

Overview

Introduction

The Female Genital Mutilation Data Set  provides essential information in relation to the female genital mutilation population across England.

The Female Genital Mutilation Data Set  is used:

  • To publish Official Statistics which will inform the Department of Health and Social Care, NHS England, other Government Agencies and the public, about female genital mutilation when it has been identified

  • To identify the potential risk of female genital mutilation to young girls and vulnerable women

  • For better planning and management of female genital mutilation SERVICES  at a local level and across England

Data may be input immediately using an input screen via the NHS Digital Clinical Audit Platform when female genital mutilation is identified, or data extracts for Patients, can be submitted as a bulk upload on a monthly basis for each ORGANISATION.

CARE CONTACT activities undertaken for female genital mutilation  PATIENTS  during the REPORTING PERIOD  are reported in the data upload.  This includes any attendances at an Out-Patient Clinic  led by any type of CARE PROFESSIONAL, Hospital Provider Spells, Emergency Care Attendances, Group TherapyWard Attendances; or any other type of direct PATIENT -facing CARE CONTACT, with an exception to Sexual and Reproductive Health Clinics  and Genitourinary Medicine (GUM) clinics, who are not required to submit the Female Genital Mutilation Data Set  to the NHS Digital.

SNOMED CT Refset  Metadata:

  • Female genital mutilation related findings:

    • Refset

      FSN: Female genital mutilation related findings simple reference set (foundation metadata concept)

    • Refset

      Id: 999002041000000103

For further details relating to the SNOMED CT Refset  Metadata, see the Data Dictionary for Care (DD4C) website at: Female genital mutilation related findings.

  • Female genital mutilation related procedures:

    • Refset

      FSN: Female genital mutilation related procedures simple reference set (foundation metadata concept)

    • Refset

      Id: 999002031000000107

For further details relating to the SNOMED CT Refset  Metadata, see the Data Dictionary for Care (DD4C) website at: Female genital mutilation related procedures.

Data Extract Specification

Description

The Department of Health and Social Care  requires all  NHS Trusts, NHS Foundation Trusts and GENERAL MEDICAL PRACTITIONERS  to generate and provide a data extract in accordance with the Female Genital Mutilation Data Set. This requirement is applicable to all CARE PROFESSIONALS in these ORGANISATIONS whenever it has been identified that a woman or young girl has undergone female genital mutilation.

Further information is available on the NHS Digital  website at: Female Genital Mutilation Datasets.

Time period

Data extracted from systems can be submitted as a bulk upload on a quarterly basis for each ORGANISATION.

Format

Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS Digital Clinical Audit Platform. The data elements should be transmitted in the order specified in the Female Genital Mutilation Data Set.

Transmission

Electronic files must be transmitted to NHS Digital  via the Clinical Audit Platform which is a secure web portal.

Connection to the web portal requires registration to the Clinical Audit Platform, which will include the provision of a login account name and password.

Further information about the Clinical Audit Platform and the data upload facility can be found on the NHS Digital website: at Clinical Audit Platform.

Further guidance on the Female Genital Mutilation Data Set  can be found on the on the  NHS Digital  website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present

  • R = Required: NHS business processes cannot be delivered without this data element

  • O = Optional: the inclusion of this data element is optional as required for local purposes.

Specification

PATIENT

To carry details pertaining to the patient.One occurrence of this group is required.

Mandation

Data Elements

M

ORGANISATION CODE (CODE OF PROVIDER)

R

NHS NUMBER

M

LOCAL PATIENT IDENTIFIER (EXTENDED)

M

PERSON BIRTH DATE

M

POSTCODE OF USUAL ADDRESS

M

PERSON GIVEN NAME (FIRST)

M

PERSON FAMILY NAME

R

COUNTRY CODE (BIRTH)

R

COUNTRY CODE (ORIGIN)

O

REGION OF COUNTRY CODE FOR FEMALE GENITAL MUTILATION (ORIGIN)

R

GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION)

CARE CONTACT

To carry details of the care contact.One occurrence of this group is required.

Mandation

Data Elements

M

ORGANISATION CODE (CODE OF PROVIDER)

R

NHS NUMBER

M

LOCAL PATIENT IDENTIFIER (EXTENDED)

M

PERSON BIRTH DATE

M

CARE CONTACT DATE

R

SOURCE OF REFERRAL FOR FEMALE GENITAL MUTILATION

R

REFERRING ORGANISATION CODE

R

SITE CODE (OF TREATMENT)

R

ACTIVITY TREATMENT FUNCTION CODE

R

PREGNANCY STATUS INDICATOR

O

FEMALE GENITAL MUTILATION IDENTIFICATION METHOD CODE

R

FEMALE GENITAL MUTILATION FAMILY HISTORY INDICATOR

R

NUMBER OF DAUGHTERS UNDER 18

R

ADVISED OF HEALTH IMPLICATIONS INDICATOR

R

ADVISED OF LEGAL IMPLICATIONS INDICATOR

R

DAUGHTER BORN AT THIS ENCOUNTER INDICATOR

O

COUNTRY CODE (FATHER BIRTH)

O

COUNTRY CODE (FATHER ORIGIN)

FEMALE GENITAL MUTILATION

To carry female genital mutilation details.One occurrence of this group is required.

Mandation

Data Elements

M

ORGANISATION CODE (CODE OF PROVIDER)

R

NHS NUMBER

M

LOCAL PATIENT IDENTIFIER (EXTENDED)

M

PERSON BIRTH DATE

M

CARE CONTACT DATE

R

FEMALE GENITAL MUTILATION IDENTIFIED TYPE CODE

O

FEMALE GENITAL MUTILATION TYPE 4 CODE

R

DEINFIBULATION UNDERTAKEN REASON

R

FEMALE GENITAL MUTILATION AGE CATEGORY

R

COUNTRY CODE (FEMALE GENITAL MUTILATION PERFORMED)

Also Known As

This data set is also known by these names:

Context Alias
Also known as FGMDS
Short name Female Genital Mutilation