National Neonatal Data Set - Episodic and Daily Care
National Neonatal Data Set - Episodic and Daily Care
Overview
Introduction
The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff on all admissions to Neonatal Critical Care Units in England.
The National Neonatal Data Set is in two parts:
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The National Neonatal Data Set - Episodic and Daily Care covers the period of time a baby is cared for in Neonatal Critical Care, Transitional Care, or other non-standard critical care settings
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The National Neonatal Data Set - Two Year Neonatal Outcomes Assessment, carries data relating to a Two Year Neonatal Outcomes Assessment carried out on the same child approximately two years after their treatment. The Two Year Neonatal Outcomes Assessment may be carried out by the same ORGANISATION who was responsible for the neonatal CRITICAL CARE PERIOD, or by a different ORGANISATION.
The two neonatal data sets comprise data items relating to PATIENT demographics, CLINICAL INTERVENTIONS, outcomes, and PATIENT DIAGNOSES. Each data item is mapped where possible to existing ISB/ SCCI / DCB Information Standards and Collections (including Extractions) (such as the Neonatal Critical Care Minimum Data Set and Maternity Services Data Set Version 1) as well as to SNOMED CT and ICD codes.
The aim of the National Neonatal Data Set is to extract data items from electronic clinical records, create a database of these items, and make this available as a national resource to serve a variety of needs, so avoiding duplicate data collections for different purposes, minimising the burden placed upon clinical teams, and promoting data quality and completeness.
ORGANISATIONS involved in the collection may choose whether to allow identifiable or unidentifiable (anonymised) information to flow to the Neonatal Data Analysis Unit. Where anonymised data is to flow, the appropriate 'withheld' patient and parents demographic structures should be used (i.e. those with no PERSON IDENTIFIERS, such as NHS NUMBER or PERSON BIRTH DATE).
In addition, where anonymisation is required, the dates and times of events carried throughout the data set (such as SAMPLE COLLECTION DATE AND TIME, PROCEDURE DATE AND TIME (ABDOMINAL X-RAY)) should be replaced with the specific relevant year and month of the event and the NUMBER OF MINUTES (BIRTH TO EVENT). The National Neonatal Data Set structure allows an either/or choice for these event items throughout the data set.
Data Collection
The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff relating to all neonatal critical care delivered in England. The Neonatal Data Analysis Unit has established a database, the National Neonatal Research Database (NNRD) to hold data comprising the National Neonatal Data Set, as a national resource.
Submission Information
For submission information, see the NDAU website. Note that all date and time fields in the National Neonatal Data Set should be in Co-ordinated Universal Time (UTC) for submission purposes.
Further Guidance
Further guidance has been produced by the Neonatal Data Analysis Unit and is available on their website at: NDAU website.
Mandation
The Mandation column indicates the recommendation for the inclusion of data.
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M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
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R = Required: NHS business processes cannot be delivered without this data element
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O = Optional: the inclusion of this data element is optional as required for local purposes
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P = Pilot: this data element is for piloting use only.
Note: items in the Mandation column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.
Specification
DEMOGRAPHICS AND BIRTH INFORMATION (BABY) | |
---|---|
Mandation |
Baby Demographics (Standard)
To carry the Baby's demographic details where anonymisation of the record is NOT required.One occurrence of this group is required. |
R |
|
M |
|
R |
|
R |
|
M |
|
R |
|
M |
SITE CODE (OF ACTUAL PLACE OF DELIVERY) Or |
R |
|
O |
|
O |
|
O |
|
O |
|
R |
|
P |
|
O |
|
O |
|
R |
BASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH) |
Or | |
Mandation |
Baby Demographics (Withheld)
To carry the Baby's demographic details where anonymisation of the record IS required.One occurrence of this group is required. |
M |
|
M |
|
R |
|
M |
SITE CODE (OF ACTUAL PLACE OF DELIVERY) Or |
R |
|
O |
|
O |
|
O |
|
O |
|
R |
|
P |
|
O |
|
O |
|
R |
BASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH) |
PARENTS | |
---|---|
Mandation |
Parents Demographics (Standard)
To carry the Parent's demographic details where anonymisation of the record is NOT required.One occurrence of this group is permitted. |
R |
|
M |
|
R |
|
R |
|
R |
|
M |
|
P |
QUALIFICATION ATTAINMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET) |
O |
|
R |
|
R |
GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION (MOTHER)) |
R |
|
R |
|
R |
|
Or | |
Mandation |
Parents Demographics (Withheld)
To carry the Parent's demographic details where anonymisation of the record IS required.One occurrence of this group is permitted. |
M |
|
R |
|
P |
QUALIFICATION ATTAINMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET) |
O |
|
R |
|
R |
GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION (MOTHER)) |
R |
|
R |
|
R |
ANTENATAL
To carry details of the pregnancy.One occurrence of this group is required |
|
---|---|
Mandation |
Data Elements |
P |
|
M |
SITE CODE (OF INTENDED PLACE OF DELIVERY) Or |
R |
|
R |
MATERNITY COMPLICATING MEDICAL DIAGNOSIS TYPE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
P |
MATERNITY OBSTETRIC DIAGNOSIS TYPE (CURRENT PREGNANCY) Multiple occurrences of this item are permitted |
R |
MATERNITY MEDICAL DIAGNOSIS TYPE (CURRENT PREGNANCY) Multiple occurrences of this item are permitted |
R |
|
R |
|
O |
HAEMOGLOBINOPATHY INVESTIGATION RESULT CODE FOR NATIONAL NEONATAL DATA SET (MOTHER) |
R |
|
O |
|
R |
STEROIDS GIVEN DURING PREGNANCY TO MATURE FETAL LUNGS INDICATOR |
R |
|
O |
|
O |
|
R |
Or LAST MENSTRUAL PERIOD YEAR AND MONTH And |
M |
ESTIMATED DATE OF DELIVERY (AGREED) Or ESTIMATED DATE OF DELIVERY (AGREED) YEAR AND MONTH And |
R |
LABOUR AND DELIVERY
To carry details of the labour and delivery.One occurrence of this group is required |
|
---|---|
Mandation |
Data Elements |
R |
LABOUR OR DELIVERY ONSET METHOD CODE (NATIONAL NEONATAL DATA SET) |
O |
|
O |
MEDICATION GIVEN DURING LABOUR (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
R |
RUPTURE OF MEMBRANES DATE TIME Or RUPTURE OF MEMBRANES YEAR AND MONTH And |
O |
|
O |
|
R |
|
M |
|
P |
|
P |
Multiple occurrences of this item are permitted |
R |
|
R |
|
O |
|
R |
|
R |
|
R |
|
R |
|
O |
NEONATAL RESUSCITATION DRUG (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
P |
|
P |
|
P |
|
O |
|
O |
|
O |
UMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (ARTERIAL) |
O |
UMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (VENOUS) |
O |
|
R |
|
R |
|
R |
CLINICAL TRIALS (EPISODIC)
To carry details of Clinical Trial enrolment at any time during the Neonatal Critical Care Period.Multiple occurrences of this group are permitted. |
|
---|---|
Mandation |
Data Elements |
O |
|
O |
CLINICAL TRIAL MEDICATION ADMINISTERED NAME Multiple occurrences of this item are permitted |
INFECTION CULTURES (EPISODIC) | |
---|---|
Mandation |
Infection Culture Indicators
To carry indicators relating to Infection Cultures undertaken at any time during the Neonatal Critical Care Period.One occurrence of this group is permitted. |
P |
|
P |
|
P |
|
Mandation |
Infection Cultures
To carry information relating to Infection Cultures at any time during the Neonatal Critical Care Period.Multiple occurrences of this group are permitted. |
R |
SAMPLE COLLECTION DATE AND TIME Or SAMPLE COLLECTION YEAR AND MONTH And |
R |
|
R |
CLINICAL SIGN OBSERVED AT SAMPLE COLLECTION Multiple occurrences of this item are permitted |
R |
SAMPLE TEST RESULT ORGANISM TYPE (SNOMED CT) Multiple occurrences of this item are permitted |
O |
SAMPLE ANTIBIOTIC SENSITIVITY RESULT (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
ABDOMINAL X-RAYS (EPISODIC) | |
---|---|
Mandation |
Abdominal X-Ray Indicator
To carry an indicator relating to Abdominal X-Rays undertaken at any time during the Neonatal Critical Care Period.One occurrence of this group is permitted. |
P |
|
Mandation |
Abdominal X-Rays
To carry information relating to Abdominal X-Rays at any time during the Neonatal Critical Care Period.Multiple occurrences of this group are permitted. |
R |
PROCEDURE DATE AND TIME (ABDOMINAL X-RAY) Or PROCEDURE YEAR AND MONTH (ABDOMINAL X-RAY) And |
R |
ABDOMINAL X-RAY PERFORMED TO INVESTIGATE ABDOMINAL SIGNS INDICATOR |
R |
CONDITION SEEN IN ABDOMEN DURING X-RAY Multiple occurrences of this item are permitted |
R |
ABDOMINAL X-RAY PERFORMED REASON Multiple occurrences of this item are permitted |
R |
TRANSFERRED FROM NEONATAL INTENSIVE CARE UNIT FOR NECROTISING ENTEROCOLITIS MANAGEMENT INDICATOR |
R |
|
R |
VISUAL INSPECTION CONFIRMED NECROTISING ENTEROCOLITIS DURING LAPAROTOMY INDICATOR |
R |
HISTOLOGY CONFIRMED NECROTISING ENTEROCOLITIS FOLLOWING LAPAROTOMY INDICATOR |
R |
PERITONEAL DRAIN INSERTED FOLLOWING ABDOMINAL X-RAY INDICATOR |
RETINOPATHY OF PREMATURITY SCREENING (EPISODIC) | |
---|---|
Mandation |
Retinopathy of Prematurity Screening Indicator
To carry an indicator relating to Retinopathy of Prematurity Screening undertaken at any time during the Neonatal Critical Care Period.One occurrence of this group is required. |
M |
|
Mandation |
Retinopathy of Prematurity Screening
To carry information relating to Retinopathy of Prematurity Screening at any time during the Neonatal Critical Care Period.Multiple occurrences of this group are permitted. |
R |
PROCEDURE DATE AND TIME (RETINOPATHY OF PREMATURITY SCREENING) Or PROCEDURE YEAR AND MONTH (RETINOPATHY OF PREMATURITY SCREENING) And |
R |
SITE CODE (OF RETINOPATHY OF PREMATURITY SCREENING) Or |
R |
|
R |
|
R |
RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (LEFT EYE) |
R |
RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (RIGHT EYE) |
R |
|
R |
|
R |
|
R |
|
R |
NEWBORN BLOOD SPOT BIOCHEMICAL SCREENING (EPISODIC) | |
---|---|
Mandation |
Newborn Blood Spot Test Indicator
To carry an indicator relating to Newborn Blood Spot Tests undertaken at any time during the Neonatal Critical Care Period.One occurrence of this group is required. |
M |
|
Mandation |
Newborn Blood Spot Screening
To carry details of Newborn Blood Spot Biochemical Screening undertaken at any time in the Neonatal Critical Care Period.Multiple occurrences of this group are permitted. |
BLOOD SPOT CARD COMPLETION YEAR AND MONTH And |
NEWBORN HEARING SCREENING (EPISODIC) | |
---|---|
Mandation |
Newborn Hearing Screening Indicator
To carry an indicator relating to Newborn Hearing Screening undertaken at any time during the Neonatal Critical Care Period.One occurrence of this group is permitted. |
P |
|
Mandation |
Newborn Hearing Screening
To carry information relating to Newborn Hearing Screening at any time during the Neonatal Critical Care Period.Multiple occurrences of this group are permitted. |
R |
PROCEDURE DATE AND TIME (NEWBORN HEARING SCREENING) Or PROCEDURE YEAR AND MONTH (NEWBORN HEARING SCREENING) And |
O |
NEWBORN HEARING SCREENING OUTCOME LEFT EAR (NATIONAL NEONATAL DATA SET) |
O |
NEWBORN HEARING SCREENING OUTCOME RIGHT EAR (NATIONAL NEONATAL DATA SET) |
O |
DAILY CARE INFORMATION | |
---|---|
Mandation |
Daily Care General Information
To carry General Information relating to Daily Care.Multiple occurrences of this group are permitted (at least one occurrence is required). |
M |
NEONATAL CRITICAL CARE DAILY CARE DATE Or NEONATAL CRITICAL CARE DAILY CARE YEAR AND MONTH And |
R |
|
O |
|
O |
|
R |
|
R |
|
R |
|
R |
DIAGNOSIS (ICD ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted And/Or DIAGNOSIS (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted |
R |
PROCEDURE (OPCS ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted And/Or PROCEDURE (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE) Multiple occurrences of this item are permitted |
R |
PERSON ACCOMPANYING TRANSPORTED PATIENT Multiple occurrences of this item are permitted |
Mandation |
Daily Care Respiratory
To carry Respiratory information relating to Daily Care.One occurrence of this group is required. |
P |
RESPIRATORY SUPPORT DEVICE TYPE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
P |
RESPIRATORY SUPPORT MODE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
R |
|
R |
|
R |
|
R |
|
R |
SURFACTANT GIVEN INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
P |
|
Mandation |
Daily Care Cardiovascular
To carry Cardiovascular information relating to Daily Care.One occurrence of this group is required. |
R |
CONTINUOUS INFUSION OF PULMONARY VASODILATOR RECEIVED INDICATOR |
R |
|
R |
|
R |
TREATMENT TYPE FOR PATENT DUCTUS ARTERIOSUS Multiple occurrences of this item are permitted |
Mandation |
Daily Care Gastrointestinal
To carry Gastrointestinal information relating to Daily Care.One occurrence of this group is required. |
R |
|
R |
|
R |
|
R |
|
R |
|
Mandation |
Daily Care Blood Transfusion
To carry Blood Transfusion information relating to Daily Care.Multiple occurrences of this group are permitted. |
R |
|
R |
BLOOD TRANSFUSION PRODUCT TYPE Multiple occurrences of this item are permitted |
Mandation |
Daily Care Neurology
To carry Neurology information relating to Daily Care.One occurrence of this group is required. |
R |
|
R |
|
R |
|
R |
|
R |
|
R |
|
R |
HYPOXIC ISCHEMIC ENCEPHALOPATHY GRADE (HIGHEST ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
Mandation |
Daily Care Retinopathy of Prematurity Screening
To carry Retinopathy of Prematurity information relating to Daily Care.One occurrence of this group is required. |
R |
|
Mandation |
Daily Care Fluids and Feeding
To carry Fluids and Feeding information relating to Daily Care.One occurrence of this group is required. |
R |
Multiple occurrences of this item are permitted |
R |
|
R |
INTRAVENOUS INFUSION OF GLUCOSE AND ELECTROLYTE SOLUTION RECEIVED INDICATOR |
R |
Multiple occurrences of this item are permitted |
R |
FORMULA MILK OR MILK FORTIFIER TYPE Multiple occurrences of this item are permitted Or FORMULA MILK OR MILK FORTIFIER TYPE (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
R |
|
O |
Multiple occurrences of this item are permitted |
Mandation |
Daily Care Infections
To carry Infection information relating to Daily Care.One occurrence of this group is required. |
R |
|
Mandation |
Daily Care Jaundice
To carry Jaundice information relating to Daily Care.One occurrence of this group is required. |
R |
|
Mandation |
Daily Care Medication
To carry Medication Administered information relating to Daily Care.One occurrence of this group is permitted. |
R |
MEDICATION GIVEN DURING NEONATAL CRITICAL CARE DAILY CARE DATE (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
Also Known As
This data set is also known by these names:
Context | Alias |
---|---|
Short name | Episodic and Daily Care |