Neonatal Critical Care Minimum Data Set

IntroductionThe Neonatal Critical Care Minimum Data Set (NCCMDS) provides a record of what happens to a PATIENT when they receive Neonatal Critical Care in a Neonatal Intensive Care Unit, Maternity WARD, or Neonatal Transitional Care WARD.

Overview

Introduction

The Neonatal Critical Care Minimum Data Set (NCCMDS) provides a record of what happens to a PATIENT when they receive Neonatal Critical Care in a Neonatal Intensive Care Unit, Maternity WARD, or Neonatal Transitional Care WARD.

The primary purpose of the Neonatal Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System  within neonatal critical care. The Neonatal Critical Care Minimum Data Set supports the National Tariff Payment System  by capturing the data needed to generate a Healthcare Resource Group  (HRG) for each calendar day (or part thereof) of a period of neonatal critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Neonatal Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '13 - Neonatal Intensive Care Unit (Neonatal critical care patients predominate)'.

b) All PATIENTS (excluding Mothers) on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code:

  • 14 - Facility for Babies on a Neonatal Transitional Care Ward
  • 15 - Facility for Babies on a Maternity Ward

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:

01

Respiratory support via a tracheal tube (Respiratory support via a tracheal tube provided)

02

Nasal Continuous Positive Airway Pressure (nCPAP) (PATIENT receiving nCPAP for any part of the day)

04

Exchange Transfusion (PATIENT received exchange transfusion)

05

Peritoneal Dialysis (PATIENT received Peritoneal Dialysis)

06

Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)

07

Parenteral Nutrition (PATIENT receiving Parenteral Nutrition (amino acids +/- lipids))

08

Convulsions (PATIENT having convulsions requiring treatment)

09

Oxygen Therapy (PATIENT receiving additional oxygen)

10

Neonatal abstinence syndrome (PATIENT receiving drug treatment for neonatal abstinence (withdrawal) syndrome)

11

Care of an intra-arterial catheter or chest drain (PATIENT receiving care of an intra-arterial catheter or chest drain)

12

Dilution Exchange Transfusion (PATIENT received Dilution Exchange Transfusion)

13

Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))

14

Tracheostomy cared for by external Carer (PATIENT receiving care of tracheostomy cared for by an external Carer (e.g. parent) not by a NURSE)

15

Recurrent apnoea (PATIENT has recurrent apnoea needing frequent intervention, i.e. over 5 stimulations in 8 hours, or resuscitation with IPPV two or more times in 24 hours)

16

Haemofiltration (PATIENT received Haemofiltration)

22

Continuous monitoring (PATIENT requiring continuous monitoring (by mechanical monitoring equipment) of respiration or heart rate, or by transcutaneous transducers or by Saturation Monitors. Note: apnoea alarms and monitors are excluded as forms of continuous monitoring)

23

Intravenous glucose and electrolyte solutions (PATIENT being given intravenous glucose and electrolyte solutions)

24

Tube-fed (PATIENT being tube-fed)

25

Barrier nursed (PATIENT being barrier nursed)

26

Phototherapy (PATIENT receiving phototherapy)

27

Special monitoring (PATIENT receiving special monitoring of blood glucose or serum bilirubin measurement at a minimum frequency of more than one per calendar day)

28

Observations at regular intervals (PATIENT requiring recorded observations for temperature, heart rate, respiratory rate, blood pressure or scoring for neonatal abstinence syndrome. Recorded observations must be at a minimum frequency of 4 hourly)

29

Intravenous medication (PATIENT receiving intravenous medication)

80

Heated Humidified High Flow Therapy (HHHFT) (PATIENT  receiving HHHFT)

81

Presence of an umbilical venous line

82

Continuous infusion of insulin (PATIENT  receiving a continuous infusion of insulin)

83

Therapeutic hypothermia (PATIENT  receiving therapeutic hypothermia)

84

PATIENT

 has a Replogle tube in situ

85

PATIENT

 has an epidural catheter in situ

86

PATIENT

 has an abdominal silo

87

Administration of intravenous (IV) blood products

88

PATIENT

 has a central venous or long line (Peripherally Inserted Central Catheter line) in situ

89

PATIENT

 has an indwelling urinary or suprapubic catheter in situ

90

PATIENT

 has a trans-anastomotic tube in situ following oesophageal atresia repair

91

PATIENT

 has confirmed clinical seizure(s) today and/or continuous cerebral function monitoring (CFM)

92

PATIENT

 has a ventricular tap via needle or reservoir today

93

PATIENT

 has a stoma

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Neonatal Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements.  

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Neonatal Critical Care Minimum Data Set  is carried into the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, see SCCI0075:

The Secondary Uses Service  groups this data into neonatal critical care Healthcare Resource Groups; these are a mandated currency under the National Tariff Payment System. Further guidance can be found on the NHS Digital  website at:  SCCI0075.

Specification

Person Group (Patient)

To carry the personal details of the Patient (the baby).One occurrence of this Group is permitted.

Mandation

Data Elements

PERSON BIRTH DATE

DISCHARGE DATE (HOSPITAL PROVIDER SPELL)

DISCHARGE METHOD CODE (HOSPITAL PROVIDER SPELL)

Neonatal Critical Care Group

To carry the details of the Neonatal Critical Care Period.One occurrence of this Group is permitted.

Mandation

Data Elements

CRITICAL CARE LOCAL IDENTIFIER

CRITICAL CARE START DATE

CRITICAL CARE START TIME

CRITICAL CARE DISCHARGE DATE

CRITICAL CARE DISCHARGE TIME

CRITICAL CARE UNIT FUNCTION

GESTATION LENGTH (AT DELIVERY)

Neonatal Critical Care Daily Activity Group

To carry the daily activity data for each day of the Neonatal Critical Care Period.999 occurrences of this Group are permitted.

Mandation

Data Elements

ACTIVITY DATE (CRITICAL CARE)

PERSON WEIGHT

20 occurrences of Critical Care Activity Codes are permitted within the Neonatal Critical Care Daily Activity Group

20 occurrences of Critical Care Activity Codes are permitted within the Neonatal Critical Care Daily Activity Group. All codes relate to care provided on the ACTIVITY DATE (CRITICAL CARE).

Mandation

Data Elements

CRITICAL CARE ACTIVITY CODE

20 occurrences of High Cost Drugs OPCS codes are permitted within the Neonatal Critical Care Daily Activity Group

20 occurrences of High Cost Drugs OPCS codes are permitted within the Neonatal Critical Care Daily Activity Group. All codes relate to drugs provided on the ACTIVITY DATE (CRITICAL CARE).

Mandation

Data Elements

HIGH COST DRUGS (OPCS)

Also Known As

This data set is also known by these names:

Context Alias
Also known as NCCMDS
Short name Neonatal Critical Care