Paediatric Critical Care Minimum Data Set

IntroductionThe Paediatric Critical Care Minimum Data Set (PCCMDS) provides a record of what happens to a PATIENT when they receive Paediatric Critical Care in a Paediatric Intensive Care Unit, or other critical care setting suitable for children.

Overview

Introduction

The Paediatric Critical Care Minimum Data Set (PCCMDS) provides a record of what happens to a PATIENT when they receive Paediatric Critical Care in a Paediatric Intensive Care Unit, or other critical care setting suitable for children.

The primary purpose of the Paediatric Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within paediatric critical care. The Paediatric Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group  (HRG) for each calendar day (or part thereof) of a period of paediatric critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Paediatric Critical Care Minimum Data Set  is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION  of National Code '04 - Paediatric Intensive Care Unit (Paediatric critical care patients predominate)'

b) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION  of National Code of either:

  • 16 - Ward for children and young people
  • 17 - High Dependency Unit for children and young people
  • 18 - Renal Unit for children and young people
  • 19 - Burns Unit for children and young people
  • 92 - Non standard location using the operating department for children and young people

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:  

04

Exchange Transfusion (PATIENT received exchange transfusion)

05

Peritoneal dialysis (acute PATIENTS only i.e. excluding chronic) *

06

Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)

09

Oxygen Therapy

(supplementary Oxygen Therapy, irrespective of ventilatory state) **

13

Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))

16

Haemofiltration (PATIENT received Haemofiltration)

50

Continuous electrocardiogram monitoring

51

Invasive ventilation via endotracheal tube

52

Invasive ventilation via tracheostomy tube

53

Non-invasive ventilatory support

55

Nasopharyngeal airway

56

Advanced ventilatory support (Jet or Oscillatory ventilation)

57

Upper airway obstruction requiring nebulised Epinephrine/ Adrenaline

58

Apnoea requiring intervention

59

Acute severe asthma requiring intravenous bronchodilator therapy or continuous nebuliser

60

Arterial line monitoring

61

Cardiac pacing via an external box (pacing wires or external pads or oesophageal pacing)

62

Central venous pressure monitoring

63

Bolus intravenous fluids (> 80 ml/kg/day) in addition to maintenance intravenous fluids

64

Cardio-pulmonary resuscitation (CPR)

65

Extracorporeal membrane oxygenation (ECMO) or Ventricular Assist Device (VAD) or aortic balloon pump

66

Haemodialysis (acute PATIENTS only i.e. excluding chronic)

67

Plasma filtration or Plasma exchange

68

ICP-intracranial pressure monitoring

69

Intraventricular catheter or external ventricular drain

70

Diabetic ketoacidosis (DKA) requiring continuous infusion of insulin

71

Intravenous infusion of thrombolytic agent (limited to tissue plasminogen activator [tPA] and streptokinase)

72

Extracorporeal liver support using Molecular Absorbent Liver Recirculating System (MARS)

73

Continuous pulse oximetry

74

PATIENT

nursed in single occupancy cubicle

80

Heated Humidified High Flow Therapy (HHHFT) (PATIENT  receiving HHHFT)

85

PATIENT

 has an epidural catheter in situ

94

PATIENT

 has arrhythmia requiring intravenous anti-arrhythmic therapy

95

PATIENT

 has reduced conscious level (Glasgow Coma Score 12 or below) and hourly (or more frequent) Glasgow Coma Score monitoring

96

Intravenous infusion of sedative agent (PATIENT  receiving continuous intravenous infusion of sedative agent)

97

PATIENT

 has status epilepticus requiring treatment with continuous intravenous infusion

Notes:

  • * National Code 05 applies as an inclusion criterion for acute PATIENTS only: it does not apply with chronic PATIENTS.

  • ** National Code 09 applies as an inclusion criterion when the PATIENT receives supplementary Oxygen Therapy, irrespective of their ventilatory state.

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Paediatric Critical Care Minimum Data Set  must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements.

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the  Paediatric Critical Care Minimum Data Set  is sent to the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages,  SCCI0076:

The Secondary Uses Service  groups this data into paediatric critical care Healthcare Resource Groups. Further guidance can be found on the NHS Digital  website at:  SCCI0076.

Specification

Person Group (Patient)

To carry the personal details of the Patient.One occurrence of this Group is permitted.

Mandation

Data Elements

PERSON BIRTH DATE

DISCHARGE DATE (HOSPITAL PROVIDER SPELL)

DISCHARGE METHOD CODE (HOSPITAL PROVIDER SPELL)

Paediatric Critical Care Group

To carry the details of the Paediatric Critical Care Period.

Mandation

Data Elements

CRITICAL CARE LOCAL IDENTIFIER

CRITICAL CARE START DATE

CRITICAL CARE START TIME

CRITICAL CARE DISCHARGE DATE

CRITICAL CARE DISCHARGE TIME

CRITICAL CARE UNIT FUNCTION

Paediatric Critical Care Daily Activity Group

To carry the daily activity data for each day of the Paediatric Critical Care Period. 999 occurrences of this Group are permitted.

Mandation

Data Elements

ACTIVITY DATE (CRITICAL CARE)

20 occurrences of Critical Care Activity Codes are permitted within the Paediatric Critical Care Daily Activity Group

20 occurrences of Critical Care Activity Codes are permitted within the Paediatric Critical Care Daily Activity Group. All codes relate to care provided on the CRITICAL CARE START DATE.

Mandation

Data Elements

CRITICAL CARE ACTIVITY CODE

2 HIGH COST DRUGS (OPCS) codes are permitted but there is the capacity for 20 codes within the Paediatric Critical Care Daily Activity Group, to allow future refinement

2 HIGH COST DRUGS (OPCS) codes are permitted but there is the capacity for 20 codes within the Paediatric Critical Care Daily Activity Group, to allow future refinement. All codes relate to drugs provided on the CRITICAL CARE LOCAL IDENTIFIER.

Mandation

Data Elements

HIGH COST DRUGS (OPCS)

Also Known As

This data set is also known by these names:

Context Alias
Also known as PCCMDS
Short name Paediatric Critical Care